Me too.. and Criona's partner Mike. Criona sent me this in 2015 to be shared.. "In 2009 Mike was given the 'all clear' from the standard cancer test that many men are given, but was diagnosed with M.E. By 2013 his energy had deteriorated dramatically. 1/4 #pwME #MECFS #MedEd
By January 2014 he was bed bound. He would not go near a doctor because of Sophia's experience. He was frightened that they might section him in a mental hospital, as they had Sophia. In March I could no longer bear to see him suffering and in so much pain. 2/4
I went behind his back and asked my doctor if he could possibly see him. He kindly agreed and for this I am most grateful.

During the next two months Mike had to be taken to hospital by ambulance 4 times to undergo various tests.3/4
In May the specialist told him that he had terminal cancer and that he had between three and six months to live. Six weeks later Mike was dead.
" Criona Wilson 2015. (Mike helped Criona and provided a lot of Sophia's day to day care. He helped me with photos of Sophia.4/4
Criona ended the piece "One day I hope that somehow, someone who has power and integrity will eventually cause the facts and truth about this devastating illness to be laid bare for the world to see, and the lack of integrity of certain psychiatrists to be exposed."
Criona and Mike's website with all the evidence Criona put together. sophiaandme.org.uk

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Dialogues ME/CFS

Dialogues ME/CFS Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @DialoguesMECFS

8 Nov
1. I feel very sad and angry, having watched Graham McPhee's funeral this afternoon. All these years gone. I want to share a section from the interview we did with him. "Bob (Courtney) was helping a number of quite eminent people get to grips with the complexities of it because
2. it's a very tangled study. I mean it’s terrible, but it’s tangled. And there are lots of things in it that you can use. He was trying to get lots of people to understand it better. There was a lot of people reacting against the PACE study, so another friend Janelle Wiley
3.andI volunteered to put all their ideas together in a detailed analysis of what was wrong. We tried to get in touch with the editor of the Lancet, we tried to get in touch with one of the authors of the PACE Trial, they just ignored us, then we tried to get in touch with a
Read 7 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Thank you for your support!

Follow Us on Twitter!

:(