A lot of discourse about staying/leaving Twitter that is bringing up good points about the point of social media. Regardless of what you choose to do I hope you realize that those of us who leave are likely those who already feel unsafe here. 1/5
It's just a question of how much more unsafe we will be in the future. I get messages or comments on posts frequently that are outright threats or personal attacks. Being able to block users and curate my feed is important. 2/5
I do not exist here to be given eugenics-based drivel every single second of every single day. I like being here with other disabled people. I do not want to be in a place where disabled people are disproportionately targeted and harassed. 3/5
So for now I don't know what will happen but I hope that those who do feel safe here are thinking mitigation strategies. How do we protest, how do we protect vulnerable people, how do we maintain valuable connections? 4/5
Whatever comes next I hope that we can protect the good things that this space has brought us. 5/5 #DisabilityTwitter

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More from @Nicole_Lee_Sch

Apr 27
I really wish non-disabled people understood just how few resources disabled people can secure as they navigate the world. My most valuable asset is my community, because this world grants me next to nothing else. 1/8
Do I have affordable accessible healthcare? No. Do I have specialists who know best therapeutics? No. Do I have pain management? No. Do I have meaningful therapy for decades of medical abuse and neglect? No. Do I have affordable medications? No. 2/8
Do I have accessible housing? Rarely. I have only ever been able to afford accessible housing when demanding accommodations on university campuses. I have never independently been able to afford an accessible apartment/home in the housing market. 3/8
Read 8 tweets
Apr 25
If this is a productive time for you - for research or conferences or publications - that's great. But it's not a productive time for me or other high risk people. So what's going to happen in the coming years? 1/6
What will happen when I'm on the job market and someone says "well they didn't publish much" or "they should've used that time to go to archives" or "they didn't present at the top conferences"? 2/6
Who on any hiring committee or external review board is going to say "I think that's an unfair standard to hold them to, because they were high risk and could not go to all of these in-person events with a pandemic still raging on"? 3/6
Read 6 tweets
Apr 23
My "10" has changed with every new traumatic event to the point where I do not have a good register that would pair with meaningful interventions. 1/5
At first I thought dislocating my shoulder was a 10. Then I dislocated a hip. Then I developed costochondritis. Then I started with CCI symptoms. Then I woke up post brain surgery with no pain meds bc the pain team messed up and told me to take ldn up to the surgery date. 2/5
My 10 is basically "what have I survived that I remained conscious for"? That's a 10. And I no longer have any rememberance of pain free days. Every day is painful. So pain levels 1-5 are negligible bc they're neverending. 3/5
Read 5 tweets
Apr 21
This week in my #DisHist class we talked about the ugly laws and Susan Schweik's excellent book. For those who don't know ugly laws were passed in major cities across the 1800s and 1900s. These laws essentially prevented disabled people from existing freely in public. 1/5
In reality they targeted all minority groups: immigrants, Black and Indigenous people, homeless people, and disabled people. They basically ushered in slum clearing projects and they went hand in hand with institutionalization (in jails, workhouses, almshouses, etc). 2/5
Every single class students comment that time has passed but so little has changed. Disabled people still can't safely exist in public. We still can't rely on public spaces to be safe or accessible for us. 3/5
Read 5 tweets
Apr 21
In grad school I was taught to critique. And so I was really surprised when I began writing those same critiques into my dissertation. Because what I didn't understand was: you will be prompted to verbally tear writing apart, but not necessarily ever commit that to the pg. 1/4
And that is something I don't get. I think deeply before I make comments. When I offer critiques, there's no difference between what I'm willing to verbalize vs what I'm willing to write. But that's not how most academics see it. 2/4
If you're not willing to write the critique on the page then why verbalize it at all? I don't like that were taught to critique, but never taught to take responsibility for those statements. Wildly performative, and utterly useless. 3/4
Read 4 tweets
Apr 19
Every week I tell myself "I just have to get through" XYZ when it comes to COVID. And each week this spring my safety becomes more and more precarious. First we had mask mandates drop in schools. I ordered bulk masks and brought a HEPA filter into my classroom. 1/9
Then we lost funding for tests and treatments. Now I find that tests are financially inaccessible, but I still have to test in the days leading up to my immunosuppressant injections I do every month. I have to test twice, bc viral load is so much more complex every evolution. 2/9
Now we have a drop in public transport masking. I'm on a commuter campus. Masking in tight spaces has undoubtedly protected some of my students on their travel to campus. Now I face inevitably higher community transmission. 3/9
Read 9 tweets

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