“If the whole world was vaccinated tomorrow and we spent just three years ‘learning to live with COVID’ under the current [U.S. public health] strategy, we could have well over a billion people living with #LongCovid” fortune.com/2022/05/08/sur…
“It reminds me of patients with #dementia. These are patients in their 20s and 30s who were healthy before—former CEOs and CFOs who were high-functioning who are now scared about their ability to manage their livelihoods with their impairment.” #LongCovid
His advice: If your aim is both to survive COVID and avoid #LongCovid, “Mask and be mindful of the public settings you’re going to go in.”
“Good masks will keep you safe,” he says, referencing N95 masks.
“Vaccines are great at preventing serious illness and death, but they don’t fully prevent COVID spread, meaning even a fully vaccinated person could catch COVID and develop symptoms that linger for weeks, months, or years.” #LongCovid
“What’s more, there’s no correlation between the severity of COVID symptoms and the development of #LongCovid —someone with no COVID symptoms could develop the debilitating condition, and someone with a severe case of COVID may not.”
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Here’s the latest data, but I’m just still shocked at the statement that “most cases last three months” ~ I don’t know of any data anywhere that would come close to that, especially since most #LongCovid cases aren’t even counted until three months.
“What the @NIH does very well, is supporting research that slowly develops..scientific knowledge. The method is good for long-term innovations that take 20 years, but not for disruptive innovation. Treatments for #LongCovid fall into the latter” grid.news/story/science/…
The underlying problem is that large federal agencies and academic centers are “like battleships,” Topol said. They “can’t really make turns and adapt to new opportunities.”
Many scientists agree: When studying a novel condition like #LongCovid, researchers should “turn to the true expert, which is the person with the condition,” said @PutrinoLab
“I think it is a developing crisis. Unfortunately, there are probably hundreds of thousands of people in our state who have symptoms," said Dr. John Baratta, “it dramatically impacts their ability to do daily activities and to be employed." #LongCovidabc11.com/long-covid-hau…
"There are a lot of people out there suffering from this that are losing their jobs because they cannot work; they cannot perform their job. And so it's pretty tough. The mental damage that a lot of us are going through is just something that you've never heard of..” #LongCovid
“Baratta said around half of his patients are unable to work. This paired with the cost of treatment leaves many patients suffering mentally, physically and financially months after their initial COVID-19 diagnosis.” #LongCovid
“39-year-old Baltimore accountant described herself as ‘Type A’ just a few months ago — tells Axios her brain fog the symptoms that bothers her the most. ‘I have to use my brain. I'm scared s--tless. I don't know how long it's going to be, & it's frightening as hell.’” #LongCovid
"I'm really worried that we're going to have patients that aren't going to get better," says Benjamin Natelson, a neurologist who heads the Pain and Fatigue Study Center at the Icahn School of Medicine at Mount Sinai. "We'll have an avalanche of continued illness." #LongCovid
“The key finding is a statistically significant loss of cortical grey matter (CGM) volume in each COVID-19 “long hauler”. The loss of CGM volume likely contributes to long term neurological sequelae resulting from COVID-19 infection.” #LongCovid europepmc.org/article/PPR/PP…
“Brain MRI often fails to identify disease correlates. 3-dimensional voxel-based morphometry (3D VBM) accurately analyzes, segments and quantifies brain volumes which allows for comparisons between infected COVID-19 ‘long haulers’ and normative data” #LongCovid
“All patients had relatively mild respiratory symptoms which did not require oxygen supplementation, hospitalization, or assisted ventilation… Damage to the CGM provides linkage to neurologic symptoms which can affect their quality of life.” #LongCovid
“Sydney, 22, was told ‘suck it up’ by a nurse. A cardiologist told George, 37, that he was ‘imagining things’. Doctors told Andrea, 48, to ‘not think illness thoughts’. Michele, 48, doctor doesn’t believe in #LongCovid because he recovered with no issues.” buzzfeednews.com/article/katiec…
“I get that doctors are busy and drained from dealing with the pandemic for over two years,” Lauren Scungio, 30, of Massachusetts, told BuzzFeed News. “But many of the doctors I’ve seen don’t seem to be keeping up with the latest #LongCovid research.”
“People with #LongCovid often know more about the issue than their healthcare providers.. Right now there’s a paucity of information and understanding around long COVID in the medical world. What understanding there is is on the patients’ side. Patients have become the experts.”