Me: being disabled is really hard right now (as it is, always, in this eugenics-dominated world). Here's something I'm struggling w/ that I want to inform ppl about so they know we are NOT experiencing the same pandemic 1/5
Non-disabled reponses:
Have you tried
1. Being wealthy
2. Not being disabled
3. Taking wholly individualist approaches to solve systemic public issues? 2/5
I complained about groceries bc this is something affecting a LOT of disabled people that non-disabled people have forgotten about. The solution is not to buy a new service or get a car or hire a private shopper or get a subscription box of foods I can't eat 3/5
The solution is to shift back to universal mask usage, or to start safe shopper hours back up. The solution is to petition city and state govts to reinstitute mask usage in public spaces (yes outdoor AND indoor). 4/5
The problem is systemic. The solutions are systemic. And YES they require buy in from YOU. It's not about me finding an individualistic solution to make up for an inadequate system. 5/5 #DisabilityTwitter #

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More from @Nicole_Lee_Sch

Jul 2
Today more than $40 of my food order was damaged. Ordering groceries is not a sign of privilege for me. I pay out my ass for delivery bc there are no safe shopping hours and no safe public transport options. I would LOVE to choose fresh foods at the store. 1/3
I HATE having to routinely throw damaged produce away. When this happens it means that I don't eat. I have such a limited diet, and so few safe foods. I eat only meat and produce. So when half the produce is bad, and a pack of chicken is damaged and leaking, I don't eat. 2/3
I can't even get the food I need just survive with EDS, MCAS, gastroparesis, etc. My life was already so limited. There are so few things I get to take pleasure in right now. And when this shit happens my world narrows in even further. 3/3 #DisabilityTwitter #COVID19
Read 4 tweets
May 21
Every issue in our news cycle today - gender affirming care, access to abortions, COVID-19 policies (or rather lack thereof), and racist hate crimes - are intimately tied to the history of the eugenics movement. These are intertwined stories. A 🧵1/20
The system of eugenics and its resulting platform is inherently racist, sexist, transphobic, ableist, etc. at its core. It's designed to protect systems of white, cis male privilege, while entrenching systems of oppression into place. And it has a long history. 2/20
The platform emerged in the late 1800s, sparked by Darwin's publication in 1859 of Origin of Species. Darwin's cousin, Sir Francis Galton, took the idea of natural selection from OoS and tried to apply it to the human population. Could we breed "ideal" humans he asked. 3/20
Read 20 tweets
May 17
A lot of my friends have just stopped talking to me because they feel guilty talking about their lives while my whole social life, apart from work, has been on hold since March 2020. And that's a whole extra thing to grieve about. 1/7
High risk people are dealing with the fact that we're still high risk over 2 years in with no meaningful infrastructure changes to protect us. We didn't use that time to radically transform our indoor environments to offer ventilation and distancing. 2/7
Many of us still can't risk shifting back into social lives when there's so much misinformation. When people are blaming COVID symptoms on allergies or stomach bugs. We can't go back out in public with a disease that's rapidly evolving and still killing people every day. 3/7
Read 7 tweets
May 16
So many professions direct their services at disabled populations. Education and healthcare are both glaring sectors where non-disabled people can receive absolutely no training from disabled voices, and interact with disabled people on a daily basis. 1/5
Why are disabled people paying for services where they'll be seen by wholly untrained "professionals?" People who do not understand or care to understand our needs/desires/goals, who put us into boxes based on capacity? 2/5
These people quite literally get to determine our access to services. Our access to medications, treatments, interventions, therapeutics. Our access to life. They determine our inclusion. And they act as barriers to save the government money. 3/5
Read 5 tweets
May 15
When are we going to incorporate disability studies into medical training? How much of our population (and how much of our population who needs frequent medical care) needs to become disabled before we integrate meaningful curriculum changes? 1/11
Medical professionals are not kind to disabled people. COVID policies continue to uphold eugenics-centered ideologies (like utilitarian ethics). Policies will continue to focus on treating ICU patients rather than preventing disease or providing palliative care. 2/11
Disabled people have, for the whole pandemic, put off care. Now even more people are putting off care because some medical centers have dropped mask mandates, or are requiring switches to subpar surgical masks instead of proper N95s. 3/11
Read 11 tweets
May 14
Looking through my medical records and God what a nightmare. So many incorrect allergies, medications, and diagnoses. Having drop down or fill in menus is not efficient or accurate. Just let patients fill these sections out themselves and get verbal confirmation in office. 1/5
If I have to explain how to spell Ehlers Danlos syndrome, or Arnold Chiari, or any of the other "rare" diseases I have to some nurse who's never heard of them I am going to just fully disassociate and go through the rest of my appts as a disembodied ghost. I'm out. 2/5
I have had the wrong meds sent to me all yr bc they click eye drops instead of pills every single time. I have had to petition for months to get a dx of terminal brain cancer removed from my files bc it was totally inaccurate and it made Drs question all my other real dx. 3/5
Read 5 tweets

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