To every doctor and/or provider who says that #EhlersDanlos diagnoses don't matter: Until I learned that my fibro diagnosis was a #misdiagnosis, I was improperly treating myself and causing further injury. It's the difference between acute/chronic injury.
I didn't know I had it for 35 years. I say 35 years because #EhlersDanlos is a birth to death condition. It took 35 years to get me diagnosed and multiple providers. I hope that the @AmerMedicalAssn starts pushing for #EhlersDanlos eduction and soon.
I firmly believe that there are multitudes of people just like me who were #misdiagnosed as having fibromyalgia or some other pain condition, even having symptoms that don't completely add up to fibro, who actually have a type or several types of #EhlersDanlosSyndrome.