Monika Dryburgh Profile picture
PhD student @HlthEquityMDHS, MSPGH (@unimelb). Working towards a sociology of fatigue in chronic illness & disability.
Oct 29, 2020 5 tweets 2 min read
Down to 10mgPred & I don’t think it agrees w me. After several nights of pretty decent (& long) sleep, last night I didn’t sleep til 4am. Managed to sleep until nearly-10, woke up in time to listen to 10am Deakin SSN seminar on CovidSafe app, successfully made & ate an omelette. Patches of decent braintime over past few days; physically pretty fatigued though, plus #PyoG is sorer again (it’s not terrible, but it’s also definitely not as good as it was mid-last week).
Oct 28, 2020 11 tweets 6 min read
Enjoying this webinar, although I don’t have the spare brain for livetweeting this evening. Thanks @LD_Australia and @PamelaSnow2! Important stuff. #YouthJustice #literacy #DLD .@PamelaSnow2: The importance of all the layers of language beyond just the literal: analogy, simile, metaphor, idiom, jokes, sarcasm, irony, satire, parody, politeness conventions — and that’s just in oral language. Metaphors in written, literary lg are even more complex!
Oct 20, 2020 33 tweets 7 min read
Excited to hear @EminaMcLean talking to @ThinkForwardEdu this evening about explicit vocabulary instruction! Primary school students have around 1200 vocab items (i.e. root words) to learn per year of schooling (across all the tiers of vocabulary). That’s a lot!

So, the fact that students who have a smaller vocab on entry to school tend to ALSO have smaller vocabs...
Oct 18, 2020 12 tweets 11 min read
#DysConf2020 Neurogastroenterologist @LauraAPace talking about the multidisciplinary #EDS clinic she helped to set up -- time to dx for the geog area was v long, time to being seen by a clinical geneticist for referred pts was THREE to FIVE YEARS. Wanted to track comorbid disease burden/syndrome burden. Clinical phenotype was often more severe than the diagnostic label suggested (for hEDS, etc). Need a more comprehensive dx for these patients.
Oct 18, 2020 36 tweets 18 min read
@satish_r_raj: pharmacological treatment for #POTS. Notes that non-pharm mgt (compression, fluid balance) are generally the foundation of management, even for the many pts who do also require medication as part of their mgt strat. #DysConf2020 Not just about high HR - tilt table cf normal controls, obv the #POTS pts get HRVelevation — BP may not change heaps — but also they feel MISSRABLE, v unwell, presyncope. .@satish_r_raj #DysConf2020
Oct 18, 2020 8 tweets 4 min read
Dr Tae Chung on the limitations of non-pharmacological management strategies for #POTS: increasing sodium+water intake > risk of elevating BP too far esp in older pts.#DysConf2020 Prob less important for younger pts (20s,30s) but worth keeping an eye on & encourages pts to self-monitor HR & BP regularly.

Also if it makes you per a lot, esp at night, can really mess w sleep, cause/contribute to insomnia #DysConf2020
Oct 18, 2020 4 tweets 4 min read
Listening to @singer_judy talking about the history, present, future of her coinage, #neurodiversity, and pondering how #ActuallyAutistic people do such awesome #sociology.

#NeurodiversitySummit The difficulties & double-edged sword of commodification:

“The task of all of us in the business of ‘Selling Neurodiversity for the Common Good’ is to stay on course via self-reflection.”
-@singer_judy
#NeurodiversitySummit
Oct 17, 2020 6 tweets 3 min read
IMHO other people *can* see ADHD, they just don’t realise that that’s what they’re seeing — hence the “what’s wrong with you?” Question. #NeurodiversitySummit #InvisibleDisability not actually invisible, just illegible to NT/ableist culture.

Yes, esp for #2e!

Compensating/#masking AND broader culturally illiteracy re neurodiversity & neurodivergence.
#NeurodiversitySummit
Oct 17, 2020 6 tweets 2 min read
Panel speakers on being accepted in their multigenerationally neurodivergent (&/or neurodivers families). But also: this is how we can “fall through the cracks” when being like this is your & your family’s normal. #NeurodiversitySummit neurodivergent family cultures including cultures of time! sometimes it makes it harder to deal w the outside world when all our family training is w/i our own neurotype! & there is a big clash with NT culture & expectations. #NeurodiversitySummit
Oct 15, 2020 26 tweets 6 min read
Listening to @milton_damian talking about “Autistic wellbeing: from flow to belonging”.

Glad it’s not any later in the day in Britain, so I’m only going to be a little bit late to bed. .@milton_damian draws on Csikszentmihalyi's (1990) concept of the 'flow state' - achieved hen skills & resources available to an individual are fully engaged in managing an activity. Needs to be EXACTLY THE RIGHT AMOUNT of challenge.
Oct 14, 2020 12 tweets 8 min read
Tomorrow's to-do list so far:

1) morning ablutions, etc
2) Stanford Neurodiversity Summit
3) diarise stuff
4) start putting meds into @NPSMedicineWise app
5) email dietitan to confirm appt time, check on what details to prepare ahead of appt. 6) reply to emails from endo & send her drug & PyoG info/pics
7) tidy up files, apps on phone, backup
8) start transferring over to new phone
9) physical phone stuff: case, screen protector, etc
10) figure out where to order from/order book for S's Dad's birthday.
Oct 14, 2020 17 tweets 4 min read
Listening to #cordeliafine presenting at the @unimelb HPS seminar on gender, women and finance. Starting with some "UNfeminist finance facts": across the world women are disadvantaged across ALL aspects of our financial lives, from personal finance to who the head of big banks and financial institutions - both formal and INformal gendered financial institutions.
Oct 14, 2020 11 tweets 6 min read
Dear Twitter, Last night I slept from just after midnight to just after 6AM, AND from 07:24-10:24AM. I guess my brain was REALLY keen on 2x90-miN sleep cycles, bc my narcoleptic phone turned itself off & I woke up w/o my alarm!Here’s me better-rested than I’ve been in ages. A fairly close-up shot of m... Apparently my good night’s sleep has yet to restore my powers of Superior Proofreading, however. 🙄😆
Oct 12, 2020 28 tweets 11 min read
Enjoying listening to @latrobelaw's Tarryn Phillips & @DALupton talking about "The politics of preparing for a pandemic" - and the sociology of it, obviously. 😄 TarrynPhillips notes that alongside the literal viral contagion of #COVID19, we saw "social contagion" right back in March, exemplified in the Toilet Paper Panic Buying. TP took on a symbolic weight, representing comfort, normalcy, dignity (&, presumably hygiene!).
Oct 12, 2020 21 tweets 7 min read
And now, @michelelobo29 on “tiger atmospheres and co-belonging in mangrove worlds” #TASASEA @michelelobo29: Tiger atmospheres: exploring using personal stories, participant observation, cultural myths and ethnography. Attuned to gender, racial, caste, religious, class, and human-animal specificities in the research. #TASASEA
Oct 12, 2020 13 tweets 5 min read
Excited to hear @annahm & @michelelobo29 presenting to @TASA_SEA group on the broad topic of “Emotional piths and affective provocations” this afternoon. #TASASEA .@annahm draws on Probyn’s (1996) work on “outside belongings”: attachments to peripheries & surfaces rather than to the centre or mainstream/ normative identities #TASASEA
Oct 11, 2020 10 tweets 5 min read
Pedersen, N., Duricova, D., & Munkholm, P. (2009). Pulmonary Crohn's disease: A rare extra-intestinal manifestation treated with infliximab. Journal of Crohn's & colitis, 3(3), 207–211. doi.org/10.1016/j.croh… #Crohns #IBD #autoimmune #autoimmunity #multisystemic #inflammatory #chronicillness #biologic #infliximab #immunomodulation #immunology #upperairway
Oct 11, 2020 4 tweets 5 min read
#embodiment #DisruptedEmbodiment #NonNormativeEmbodiment #ChronicIllness #disability #derealisation #depersonalisation #BodyMind #disidentification

I think the way this article talks about disidentification w one’s parts vs. “centering” is gesturing towards something... ...that feels relevant, even though you’re describing a *physical* part that you’re disidentified from, and the article is talking in terms of psychological concepts.

journal.workthatreconnects.org/2018/07/20/ide…
Oct 8, 2020 12 tweets 4 min read
#AusEng2020 Listening to DianaEades in conversation w Dima Rusho. Great stuff! DE notes that the distinctions between Aboriginal English and non-Aboriginal English - esp in NSW - are not always clear-cut, based on linguistic features. Rather, there are
amazing continuities and commonalities in the variety of forms of English spoken across Australia
Oct 8, 2020 8 tweets 15 min read
As I was musing to @BattenbrgBarbie recently, I suspect there are a bunch of overlaps in the social experience — along with some v important differences, esp around differential inflections along axes of power/oppression — in various experiences of being #NonNormativelyEmbodied: e.g. (in no particular order & v incompletely): Fat, #ActuallyAutistic+prone to #SensoryOverload, Deaf, in/visibly #disabled, in #ChronicPain or experiencing #chronicillness-rel’d #fatigue, racialised, trans, v tall or vshort (even without being a little person), #hypermobile...
Oct 8, 2020 37 tweets 17 min read
Dear #NEISvoid/twitter, I am VINDICATED (&, uh, still hyper on steroids, FWIW). Awesome Sleep/RespDoc is of the educated &firm opinion (upon reviewing my hospital discharge summary, lung function test results...which the hospital still hadn’t passed on yet as of this morning? 🙄) ...that I have NOT suddenly & completely coincidentally managed to develop asthma for the first time in my life at the tender age of 39 (although he thinks it does sound like a bronchospasm cough, which is literally how I was describing it when it first started happening.