"My child has Down's Syndrome, what should I expect?"
This. 100% this.
Also expect this!
#wouldntchangeathing
Overwhelmed with the replies, likes and comments about this post and thread — and thank you to everyone sharing their own stories and photos here.
A “quick” thread...
1/12
I was totally NOT ready for a child like Rosie. It was a shock when she was born and I’m ashamed to say I didn’t take it well initially.
2/12
Part of that was the matter-of-fact process that happens where you’re bombarded with documentation and booklets and basically “manuals” on “what’s wrong and going to go wrong with your child”
3/12
It’s devastating to hear how your child’s life has already been predicted and mapped out. All children are different — how can ANYONE predict their future?
4/12
Quickly I realised that ANY child can be slow to talk; slow to walk; have learning difficulties, and ANY child can be brilliant and wonderful and amazing.
5/12
Like any child Rosie has been through it — we’d been through febrile convulsions with 2 before Rosie was born, and whilst she avoided that, she suffered badly with Bronchiolitis and was in hospital for a couple of weeks with @binkyboobar in 2015
6/12
Just before Christmas 2017 she was taken into hospital again with the same, but that also turned into Pneumonia— @binkyboobar was with her for the first couple of days but we had a newborn baby and it wasn’t practical to have them all in hospital.
7/12
So, I took over, as I can work from anywhere, and stayed with Rosie over Christmas and New Year — we all made the best of it with FaceTime and hospital visits from family.
8/12
Rosie I and became thick as thieves over that time and watched Moana together many times and EVERY SINGLE DAY — thanks @TheRock for teaching me all the songs :) — Rosie was so brave, and so strong.
This is her, with assisted oxygen, watching Moana.
9/12
She met Father Christmas, and the Salisbury football team and just powered through it — with all the injections and tests and cables and pipes etc. She was amazing and SO brave.
10/12
Soon after she was back to her normal self 😂
11/12
A year later and we had our Christmas at home and together and she continues to enjoy life, every day, and reminds us and ME how fun it all is.
12/12
Still amazed from the responses to this thread including lovely photos of Rosie's extended DS family all across the world.
it's been an amazing experience with a massively, positive response.
Sadly a few negative ones which I won't respond to directly except to say...
1/3
In response to a DM offering a "cure" for Rosie, thanks but there's nothing wrong with her that needs curing -- she's completely perfect.
2/3
To the "man" that said we should "stop breeding subhumans that feed off taxpayers", I agree, and your parents have a LOT to answer for.
Rosie will grow up to be a million times the human you could ever aspire to be.
#wouldntchangeathing
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