Jennifer Brea🦒 Profile picture
Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID

Aug 25, 2019, 5 tweets

I think the new disabled people’s hashtag vis-a-vis the medical system, and especially re: disbelief and misdiagnosis of women/POC/LGBTQ should be #noncompliant

Because it’s only by being #noncompliant that so many of us were able to find accurate diagnosis, avoid “care” that might cause us harm, and find treatment that actually fit the bill.

Because it’s in the moments that, in the face of great pressure (and often against my better judgment), I did comply with the standard of care, I ended up in the three worst medical crises of my life #noncompliant

It’s because even Dr. Laura Boylan *recovered* following brain surgery, this article doubts her, the doctors doubt her, and she is called “blunt and confrontational” for fighting for her own survival propublica.org/article/in-men… #noncompliant

Because I really want to team up with @dianeoleary to launch this campaign, but it is going to be a gargantuan lift, and right now I probably have a spinal fluid leak, so I did the next best thing, and started a hashtag #noncompliant

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