Meri 4x💉“Exiled for Good of the Realm” Williams Profile picture
CTO @Pleo. NED @FlagstoneGroup. Chair @TheLeadDev 🎤 Advisor @Kindred_VC, @SkillerWhale1. Wife to @ellywilliams. #ND #EhlersDanlos 🏳️‍🌈

Feb 9, 2020, 7 tweets

I had a really good set of treatments yesterday. Feel better than I have in years.

Some tough stuff to get through (dislocated bones in feet, tendons in ankle, knee out, hip & pelvis had been out, mid back super tense trying to stabilise, etc) but somehow easier? #EhlersDanlos

Two big interventions. First chiro helping relocate bones in foot & ankle & lower leg to be correct, so deep tissue specialist could get my adhering soleus to finally release and work properly (coming at it from the side helped too). I can walk without it pulling! #EhlersDanlos

Second, seems some tendons/ligaments had ended up clumped together under my arm, where my arm bone connected in to shoulder socket. I’d gotten to the point of it feeling WRONG like something was gonna give way even doing push-ups against the wall. Fixing was intense #EhlersDanlos

I think my shoulder had been increasingly wrong for at least months, maybe even years. And that had then pulled tricep & bicep muscles & tendons (interestingly short-head this time; usually long-head) and deltoid all out of whack, as well as the attachments #EhlersDanlos

This might even have been why my shoulder blade and elbow had both been dislocating or subluxing with greater & greater frequency. Arguably that’s something I should track with greater fidelity... Prob explains some of the migraines too, given pull on neck vertebrae #EhlersDanlos

The interesting thing isn’t just that these things got fixed but how. Yesterday it was apparently much easier to get down to the layers underneath — my muscles seemed better oxygenated & more responsive to deep tissue massage, and joints easier to manipulate too #EhlersDanlos

So possibly the changes in diet & supplements & meds that I’ve made over the past couple of months are having a more significant effect than I’d realised, on top of the success over past year of the #LowDoseNaltrexone (2 days on crutches 2019 vs 3-4 weeks 2018!!) #EhlersDanlos

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