A personal note:
Our six month old daughter Francesca was diagnosed with an extremely rare and very aggressive rhabdoid brain tumor this week.
We’re looking at any and all treatments right now, including experimental.
Please keep my family in your thoughts and prayers.
Our daughter is the strongest person I know and I am confident she will fight this as hard as she can. In the meantime, I’m gonna be off work for a few weeks while we get started on treatment. I just want to thank all our friends, strangers, and medical staff for their support.
Francesca is the strongest person and most resilient person. Less than a week ago she had two brain surgeries and she's already at home and smiling. I'm confident she will fight this.
We just want to thank everyone for their love and support and prayers. I wish I could respond to everyone. Francesca’s specific tumor is known as ATRT. Our hope is to get started on treatment this week. Thank you to everyone again.
Thank you everyone! We were able to find away to make the MRI images of her brain and spine shareable via cloud from the desk just now. I truly appreciate everyone's help on this.
Share this Scrolly Tale with your friends.
A Scrolly Tale is a new way to read Twitter threads with a more visually immersive experience.
Discover more beautiful Scrolly Tales like this.