@bennessb.bsky.social Profile picture
currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. she/her.

Sep 29, 2020, 5 tweets

So as a community, we all know that some disabilities cause chronic & degenerative discomfort and some do not, right?

And that the desire to be physically comfortable is not inherently ableist?

Discomfort can be pain, fatigue, nausea, vertigo, and on and on.

People actually go into remission from chronic illness all the time. For chronic illness, a lot of people use the term remission inconsistently. So let's say that remission means no symptoms & no ongoing symptom management.

People respond differently to remission.

Some people go into remission and then decide from their study of n=1 that they are now qualified to direct everybody into remission, and that anybody who doesn't achieve remission themselves is at fault.

This is pretty ableist.

Some people go into remission and think "that was pretty fucked up, I'm going to see if I can use my fresh new everything to fight systemic barriers so that more people can access QOL improvements."

That is not ableist. It's just, getting some of your time and energy back. Idk.

Anyway, I don't find cure discourse very compelling because it's so hypothetical.

Remission discourse is not hypothetical.

A lot of chronic illnesses are dynamic. People get constant brief reminders of how different life would be without chronic illness. It's ok to want more.

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