Tom Kindlon Profile picture
With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs

Oct 6, 2020, 7 tweets

[Thread]
Dr Alastair Miller recently made the attached claim.

The results of English #MECFS rehab clinics show recovery was rare & on average people worked less after attending the services

See here
or this thread

#MyalgicE

1/n bmchealthservres.biomedcentral.com/articles/10.11…
s4me.info/threads/dr-ala…

2/n
English #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome rehab clinics:

At 1 year after initial assessment

I have been able to return to work or increase my hours: 18.0%

I have stopped working or reduced my hours: 34.8%

#GradedExerciseTherapy #CBT #MEcfs #CFS #MyalgicE

3/n
English #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome rehab clinics:

At 2- to 5-year follow-up

I have been able to return to work or increase my hours: 23.7%

I have stopped working or reduced my hours: 34.9%

#GradedExerciseTherapy #CBT #MEcfs #CFS #MyalgicE

4/n
#MECFS rehab clinics

At 1 year after initial assessment
Do you think that you are still suffering from CFS/ME? No: 2.8% Uncertain: 10%
Note “no" & "uncertain" would also include those who now consider CFS/ME to be a misdiagnosis; it doesn't mean they are fully healthy
#CFS

5/n
English #MECFS rehab clinics
Do you think that you’re still suffering from CFS/ME?
@ 2 yrs No 5.0% Uncertain 8.8%
@ 3 yrs No 2.4% Uncertain 7.2%
Note “no" & "uncertain" would also include those who now consider CFS/ME to be a misdiagnosis;it doesn't mean they’re fully healthy

6/n
English #MECFS rehab clinics

Do u think that you’re still suffering from CFS/ME?
@ 4 yrs No 6.6% Uncertain 11.3%
@ 5 yrs No 8.2% Uncertain 9.2%
Note “no" & "uncertain" would also include those who now consider CFS/ME to be a misdiagnosis;it doesn't mean they’re fully healthy

7/n
You’d expect some people with #MEcfs to say they were recovered or in remission with time *without* therapy.

Also note recovery rates were low in #PACEtrial Dr Miller refers to with no statistically significant increase for either CBT or GET


#CFStandfonline.com/doi/full/10.10…

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