THREAD: From a mom (@kodiwilson) in Louisiana: “I’m in Baton Rouge at @ololhealth Children’s Hospital with my medically fragile son, on a hospital ventilator & 6 other machines. We have done all the right things, pulled daughter from sports, we don’t go out, & Covid still came…
“… knocking on our door. My family and friends are all saying - if this virus can get to your family, then it’s coming for everyone. It’s absolutely crushing to know that he may not live, because others are dismissive of his right to live as they weaponize their own bodies…”
“…not recognizing that they bring harm to their community. There are no more pediatric beds available. The Pediatric ICU is full. My son who may not live is actually one of the less sick children in the unit- and it has been surreal to watch him struggle to live and breathe…”
“…No parent should ever have to have the conversations we have this last week with specialists you never want to meet.”
The child’s name is Braden Wilson. He has Leigh’s Disease. His mother Kodi said: “we have managed to keep him alive 15 years, 13 beyond his prognosis so far.”
I said to the mother: “What a lucky boy he is to have y’all.”
Her response was: …”we are the lucky ones, don’t you know? We could never be the humans we aspire to be without him and what he has taught us, without ever speaking a word.”
wow. ❤️
Share this Scrolly Tale with your friends.
A Scrolly Tale is a new way to read Twitter threads with a more visually immersive experience.
Discover more beautiful Scrolly Tales like this.