Thread by @FITWITMD

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen @EmmaIBDhull @DrTiffTaft A12/1
Thanks @DrAnjaliPandit & Namaste @MondayNightIBD !

Indeed,the Chronic Illness experience itself AND the Cultural Stigma prevalent in #SouthAsianIBD impact the acceptance of the illness by BOTH patient & family

This DEMANDS more Culturally Competent approaches & Advocacy!

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen @EmmaIBDhull @DrTiffTaft A12/2

There is a paucity of data to glean cultural insights & disease awareness on #SouthAsianIBD

❗️That is an issue in and of itself ❗️

👌🏾Fortunately, there is some literature to highlight the needs of the South Asian population.

#MondayNightIBD @southasianIBD

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen @EmmaIBDhull A12/3

🔎An interview cohort of UK #SouthAsianIBD patients revealed the myriad factors that shape the Patient Experience & Cultural Stigma of IBD

Kudos to the Patients & @Suzannemukherj1, Bryony Beresford, Karl Atkin & @ibdseb for these insights!

#MondayNightIBD @southasianibd

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen @EmmaIBDhull @Suzannemukherj1 A12/4

The increased prevalence of #SouthAsianIBD Perianal disease has been highlighted.

Studies recognize that both the psychosocial Burden of Symptoms and Burden of Treatment impact one's Well Being.

#MondayNightIBD @southasianIBD

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen @EmmaIBDhull @Suzannemukherj1 A12/5

In addition, #SouthAsianIBD pts experience severe STIGMA w/Ostomies😡

Notably, SA culture holds Clinicians in high esteem

Therefore, Clinicians are in a Unique position to Advocate & COUNTER negative familial input that is o/w to the pt detriment🙌🏾

#MondayNightIBD

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen @EmmaIBDhull @Suzannemukherj1 A12/6
So what can we do...

Elevating South Asian (SA) IBD Research

✅De-Mystify clinical trials to enroll more SA patients

✅Support current & future South Asian specific population research

#MondayNightIBD @southasianIBD

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen @EmmaIBDhull @Suzannemukherj1 A12/7

Elevating South Asian (SA) IBD Awareness

✅Edu Partnership w/Cultural & Religious groups (eg, Mosques, Temples, Churches)
✅Advertisements featuring SA IBD patients
✅Literature in SA languages
✅SA specific dietary guidance
✅SA Support groups

#MondayNightIBD

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen @EmmaIBDhull @Suzannemukherj1 A12/7 🙏🏾 A CALL TO ACTION 🙏🏾

#MondayNightIBD @southasianIBD @ibdesis

@DrAnjaliPandit @DCharabaty @nehagastrord @ibdseb @IBDimmunology @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @ibdesis @ownyourcrohns @crohnsbabble @rebelliousgut @drsumitbhatia @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @pakotze @philtozer1 @gvraoaig @MadhoorRamdeen Special THANKS to @MondayNightIBD Team !

@southasianIBD & @ibdesis are blessed to partner with you

We appreciate you Elevating #SouthAsianIBD awareness & education

Please TUNE IN tomorrow Wed, Feb 2nd, 2022 where our @ibdesis Patient Collaborative relays the Patient Experience