Parallel Session I: Epidemiology
FAIRVASC: A Semantic Web Approach to Rare Disease Registry Integration
Dr. Kris Mcglinn
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What are the challenges with rare disease data?
How can these be overcome?
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What is FAIRVASC?
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Multiple databases stored in different formats with different views on that data.
How can the data be integrated? Uplift process.
When part of the web of data the data is still protected.
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Defined exposures and queries.
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What have they learned through this process?
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Take home messages
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