Thread by @gretchemaben

My last session for #ATS2022 day 3 is “Priorities from a Joint-Society ATS Policy Statement on Palliative Care in Serious Respiratory Illness”!

First we have Dr. Donald Sullivan with “Fundamental Principles of Palliative Care in Respiratory Disease and Highlights from the Policy Statement.” #ATS2022

Definitions #ATS2022

Goals for this group #ATS2022

Development process of the policy statement #ATS2022

Fundamental values and principles of palliative care #ATS2022

Next we have Larry Gershon with “Stakeholder Engagement: A PAR Perspective on Palliative Care in Serious Respiratory Disease.” #ATS2022

You should first understand who the patient is as person and what they want and need before explaining palliative care and other interventions. #ATS2022

Next we have @KathleenLindell with “Engaging Caregivers as Critical Members of the Care Team.” #ATS2022

Who is a caregiver? #ATS2022

Recommendations for caregiver involvement #ATS2022

Why is this important? #ATS2022

The first step in supporting caregivers is identifying them. #ATS2022

There are condition specific needs for patients with serious respiratory illnesses, like lung transplant patients and those with medical equipment. #ATS2022

Caregiver support tools can help us identify how to help them and their needs. #ATS2022

Resources for caregivers #ATS2022

Take home message! #ATS2022

Next we have Dr. Tracy Fasolino with “Health Disparities and Equitable Access to Palliative Care in Pulmonary Medicine.” #ATS2022

COPD burden is higher in rural America and in women. #ATS2022

Communication considerations and strategies #ATS2022

Next up is Natasha Smallwood (@NatashaSmallwo4) with “The Ins and Outs of Respiratory Disease: Comprehensive Symptom Management.” #ATS2022

Symptom management recommendations #ATS2022

Palliative care principles #ATS2022

Comprehensive Symptom Assessment #ATS2022

There are a ton of validated symptom assessment tools for different symptoms. #ATS2022

Good symptom management follows from good disease-directed treatment. #ATS2022

After disease-directed treatment the next step in symptom management is non-pharmacologic approaches before pharmacologic treatment of those symptoms. We do not have enough good evidence-based treatments for symptoms. #ATS2022

Remember that the patient is in charge! #ATS2022

Next up is Dr. Richard Mularski with “Innovative Palliative Care Delivery Models.” #ATS2022

Palliative care delivery topics #ATS2022

ATS statement recommendations #ATS2022

This was the earlier statement on palliative care. #ATS2022

Disease progression #ATS2022

There are different palliative categories settings #ATS2022

Dr. Alison Turnbull is up next with “It’s the Journey Not the Destination: Goals of Care/Advance Care Planning in Respiratory Disease.” #ATS2022

Continuum of advance care planning integration in serious respiratory illnesses #ATS2022

Con argument against advance care planning #ATS2022

Pro argument for advance care planning #ATS2022

References if you’d like to learn more #ATS2022

Great episodes of the GeriPal podcast #ATS2022

How they responded to this debate. #ATS2022

Dr. Christopher Cox will now talk on “Methodologies, Models, and Measurements: Research Priorities in Palliative Care.” #ATS2022

The big issues: We don’t know who needs it most, how to best deliver it, and how to measure its effects, or who should do the work! #ATS2022

Future study design considerations #ATS2022

Future study content areas to consider #ATS2022

Study content areas continued #ATS2022

There is still a lot of work to do here! #ATS2022

Next up is Dr. Anne Wilkinson with “Hoping for the Future While Planning for the Worst: Palliative Care in States of Emergency.” #ATS2022

Natural disasters are becoming more frequent and more severe! #ATS2022

Emergency state recommendation #ATS2022

In order to incorporate palliative care into disaster planning we must first ensure that we have enough available palliative cate services (hint: we don’t have enough already). #ATS2022

Eight critical elements in planning a palliative care response #ATS2022

It’s a difficult subject but it’s better to have the conversations in advance and plan for the worst case scenario. #ATS2022

And last but never least we have Dr. Anand Iyer (@anandiyermd) with “PalliPulm, the New Frontier: Integrating Palliative Care in Pulmonary Medicine Through Primary Palliative Care.”
#ATS2022

He’s gonna focus on the first box of primary palliative care. #ATS2022

There are not enough palliative care specialists between too few fellowships, a growing aging population, and loss of providers due to burnout. #ATS2022

Options for training people in primary palliative care. These are great, but we need more accessible options! #ATS2022

There are multiple domains in quality palliative care. #ATS2022

We need to bridge these two specialities with primary #PalliPulm! #ATS2022

Here are a couple of references to review for more information. #ATS2022

How do you communicate with a patient who is confused about “competing” things happening simultaneously, like palliative referral and lung transplant work-up?

“We are going to hope for the best but prepare for the worst, and I’m going to be with you as we do both.” #ATS2022

What a great seminar by this awesome group of #PalliPulm advocates!