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Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs

Aug 24, 2022, 8 tweets

❗️SURVEY UPDATE WITH RESULTS❗️

Check out some results from the most recent two surveys including the following supplements:

NK/LK +/- SP (n=85)
Antihistamines (n=210)
Vedicinals (n=44)
Tollovid (n=48)
NAC (n=134)
Niacin (n=161)
B-complex (n=207)
EGCG (n=94)
Cromolyn (n=62)

Each of three symptom groups includes:

1) what % of respondents benefitted over all levels of reported improvement (≥15%)
2) what % of respondents experienced worsening of symptom
3) what % of respondents benefitted at least moderately, *excluding* slight improvements (≥35%)

Please note the following caveats:

1) Results may be slightly skewed bc some respondents answered that a supplement they didn't take had "no effect" rather than simply skipping the question. Initially I tried to correct for this but it was impossible to discern in some cases.

2) Note significant differences in sample sizes between supplements. Supplements with much lower sample sizes (Vedicinals = 44, Tollovid = 48, and cromolyn = 62 respondents) may be less accurate, so take those results less to heart.

First up is FATIGUE.

Top 3 *overall* (≥15% improvement) are:

🥇NK/LK +/- SP (no sig dif whether or not SP was included)
🥈Antihistamines
🥉Niacin

Notably, Vedicinals shows the greatest *worsening* of fatigue but also jumps into 🥇 when comparing efficacy w/ ≥35% improvement.

Second up is COGNITIVE FUNCTION

Top 3 *overall* (15-100% improvement) are:

🥇NK/LK
🥈Antihistamines
🥉B complex

Vedicinals shows the greatest *worsening* of cognitive effects, but also jumps into 🥈 when comparing efficacy w/ ≥35% improvement.

Last up (for now) is heart rate variability & POTS-like symptoms

Top 3 *overall* (15-100% improvement) are:

🥇NK/LK
🥈Antihistamines
🥉NK/LK + SP

Yet again, Vedicinals shows the greatest *worsening* of HRV/POTS, but jumps into 🥈 when comparing efficacy w/ ≥35% improvement.

I may add more analysis later when more time.

With these results, it opens up opportunities for better & more targeted surveys. May want to focus on the top supplements, add a few new ones, & go into more details about dosing & other symptoms. Interested in another survey?

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