Highlights from today's BBC Breakfast Interview with @BinitaKane and Sarah Boothby (@swastrosarah) about Severe #MECFS and doctors who have had no training not understanding/listening when they see severly ill patients with #MECFS
TW: Full segment - BBC Breakfast about Severe #MECFS and the death of Maeve Boothby-O'Neill.
Mentions, history, lack of understanding, training and research, no provision and calls for urgent action. @BinitaKane and Sarah Boothby (@swastrosarah)
Associated news articles:
The Times: Coroner to report dangers of ME after Boothby O’Neill death
Maeve Boothby O’Neill’s case highlighted an inability to care for patients who suffer with myalgic encephalomyelitis, or chronic fatigue syndrome
archive.ph/2024.09.27-174…
The Guardian: Not a single bed set aside to treat ME in any UK hospital, says NHS director - Father of Maeve Boothby O’Neill, who died in 2021, says it is ‘shameful’ that health system is unable to treat the disease
theguardian.com/society/2024/s…
BBC: Calls for action after death linked to ME - There are no current plans to address a nationwide deficiency in specialist hospital units and beds for patients with severe chronic fatigue syndrome, a senior doctor has told an inquest.
bbc.co.uk/news/articles/…
The Times: NHS bosses reject calls for specialist ME care National service is not on the agenda despite minister’s acknowledgement that patients are not receiving the care they need
archive.ph/2024.09.27-053…
Kent Online: There are no current plans to address a nationwide deficiency in the provision of specialist hospital units and beds for patients with severe chronic fatigue syndrome, a senior doctor told an inquest.
kentonline.co.uk/news/national/…
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