Profile picture
It'sME(Jaime) @exceedhergrasp1
, 13 tweets, 5 min read Read on Twitter
Replying to @follo_India. I'm not a dr and this is not med advice. Just things I've found work for me, personally, which may or may not work for you. Always be really careful starting something new b/c many #pwme are often medication sensitive. Start low & go slow! THREAD! (1/11)
Recently I found that selenium taken when I want to awaken is really helpful. Selenium has an effect on clock genes. At least in my case, this translates to: whenever I take it, that's when my body thinks it's time to wake up. Next morning, too! (2/11) ncbi.nlm.nih.gov/pmc/articles/P…
I take a large dose of Coenzyme Q10. Tried a loading dose of CoQ10 & it stopped a crash in its tracks! Many take tiny 'heart health' doses or use poor-quality supplements that do zip. Looked up how much to take in MS and worked up to that dose. (3/11) ncbi.nlm.nih.gov/pubmed/25603363
Lactoferrin activates NK cells & macrophages. Early on, I had trouble tolerating increased immune activation, so I stopped taking it. The next day I was FLATTENED. So I took half dose before bed, and energy went up again. Now I take full dose PM. (4/11) ncbi.nlm.nih.gov/pubmed/9606986
I keep talking about Vit D3 b/c it's such an easy, cheap intervention and it dramatically shifted my fatigue. Fat-soluble so may take longer to work. Vit D deficiency is common in chronic disease & ours is no exception. Mine critically low @ onset. (5/11) ncbi.nlm.nih.gov/pubmed/20209476
One of the first things I took that helped was Terry's Naturally Healthy Feet & Nerves. It's a B-vitamin blend & also has benfotiamine. I would not do a diff brand. Needed buckets of this at first (poor absorption/increased demand?) & was able to decrease as I improved. (6/11)
Finally, DHA (veggie). Fish oil for some reason exhausted me more, & eventually I figured out it was the EPA that my body didn't like. Vegan DHA gives me the cognitive benefits of fish oil w/o increased fatigue. (7/11) link.springer.com/article/10.100…
Finally, DIET. Get food intolerance testing & ditch everything you react to. Maybe food intolerances are ok for healthies -- but for us, every little bit of lowered inflammation helps. Some pts including me do best on uber-low carb, a la epilepsy. (8/11) ncbi.nlm.nih.gov/pubmed/30225789
So, some quick reminders: despite all my research and official-looking links, I'm STILL not an MD. I got better albeit not well by finding advice like this online and investigating, taking nothing on faith. (9/11)
Start low & go slow. And don't try it all at once! You won't know what works and doesn't. Especially in a relapsing illness where you might feel well some days and poorly on others, this is a vital practice... use a symptom diary too, to help link cause & effect... (10/11)
Go off and on meds multiple times to be sure they are doing what you think they are doing, and give fat-soluble stuff long enough to work before giving up. Consider dosage (both increasing & decreasing), and brand, too. Good luck & godspeed! (11/11)
Original question is here if anyone is interested:
.@threadreaderapp unroll pls
Missing some Tweet in this thread?
You can try to force a refresh.

Like this thread? Get email updates or save it to PDF!

Subscribe to It'sME(Jaime)
Profile picture

Get real-time email alerts when new unrolls are available from this author!

This content may be removed anytime!

Twitter may remove this content at anytime, convert it as a PDF, save and print for later use!

Try unrolling a thread yourself!

how to unroll video

1) Follow Thread Reader App on Twitter so you can easily mention us!

2) Go to a Twitter thread (series of Tweets by the same owner) and mention us with a keyword "unroll" @threadreaderapp unroll

You can practice here first or read more on our help page!

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just three indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member and get exclusive features!

Premium member ($30.00/year)

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!