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Tinu Abayomi-Paul of Wakanda @Tinu
, 14 tweets, 9 min read Read on Twitter
😆🤣😂I died when @DawnMGibson said that some sleep hygiene tips are muggle advice! #ACR18 #Painsomnia
"Magical beings such as myself don't always do well with that." #ACR18 #SpoonieChat #Facts
I much prefer the idea of a sleep PLAN. You don't hear people talking about our #painsomnia struggle outside of giving the standard advice that doesn't work for is. #ACR18
"A lot of patients feel that they're failing because right now there's all this conversation about sleep...

...having difficulty going to sleep doesn't mean I don't WANT to get sleep." - @DawnMGibson speaking my ❤️ at 8:05 of the interview. #ACR18 #SpoonieChat
*us
Like Dawn I fall asleep with what I call a sound barrier.

Without sound as I fall asleep I have anxious thoughts. I'm also a light sleeper & easily awakened with the kids around the house.

So I have a sleep playlist that starts with guided meditation. #Painsomnia
The biggest issue I have falling asleep is the pain though. Sound also serves as a distraction. When I use a meditation/music playlist, it cuts off in an hour.

If it's TV, I use a sleep timer or turn off autoplay. #Painsomnia
I know that silence can get me into deep sleep better.

But for me sometimes it's light sleep or no sleep. Sometimes I need my sound barrier to be able to drift back out when #Painsomnia wakes me up
#SpoonieChat #ACR18
"Yeah and give yourself a break too because ... the reason that we're spoonies ... that we're here at the ACR.. is because people are sick. Their bodies, they're not doing what we want them to do. @DawnMGibson #ACR18 (around 9:00 in the interview.)
Another thing I appreciate about Dawn - other #spoonies can attest to this - when she told us she was going to #ACR18?

She said WE are going. As in the community. She's not obligated to claim her success as ours, to take us with her.

But she does. Thank you @DawnMGibson! ❤️💜
Around 10:15 Dawn talks about things she does during to get back to sleep if she is awakened. She mentions ocean sounds, fireplace ambiance, picture books, other good suggestions. #Painsomnia #ACR18
"I'm not just waiting for #painsomnia to leave me alone - 'cause it won't, if I just wait. It won't." @DawnMGibson

People👏🏾 don't👏🏾 get 👏🏾 this👏🏾 at all when they give us the positive thinking zombie advice. #SpoonieChat #ACR18
I can so relate to the idea that after being sick for a while, we can feel hopeless.

Dawn makes an important point at the end of the video that more people care and are watching than we think. BRB to post the video link if you missed it!
The 14 minute interview of @DawnMGibson on the topic of #Painsomnia that I quote from in this thread can be found on the @CreakyJoints Facebook page by clicking the Video tab.

Direct link: facebook.com/creakyjoints/v… #SpoonieChat
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