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Ruth Pearce @NotRightRuth
, 14 tweets, 5 min read Read on Twitter
I'm now participating in a panel on research ethics with trans and gender diverse populations in Atlantico B at #wpath2018
The first talk in our session is by Alexander B Harris from the New York City Department of Health & Mental Hygiene in the United States. Harris is looking in the (non) inclusion of trans people in population studies of public health in the US. #wpath2018
Harris: of 198 population surveys that the US Office of Disease Prevention and Health Promotion combines to measure the Health People 2020 objectives, only 4 measure trans status. In these, modules to collect data on sexual orientation and gender identity are optional. #wpath2018
Harris: researchers often presume that measurements for sex and gender are synonymous which can lead to trans and gender diverse people being undercounted and feeling that every respondent will or should answer in accordance with sex assigned at birth. #wpath2018
Harris: Sometimes gender identity and gender nonconformity may be measured in ways that over-ascertain trans status. Outlines example of question that asks: "do you consider yourself transgender, genderqueer, genderfluid, or unsure about your gender identity"? #wpath2018
Harris: recommendations for trans inclusion in population studies:
- Improve “gendered” questions (e.g. if someone has a prostate, ask about it)
- Analyze data using comparable methods to trans health researchers.
- Report insufficient data collection as a limitation.
#wpath2018
Harris further recommends implementing questions that separately ascertain gender identity and sex assigned at birth and/or questions about trans status and gender expression, ensuring specificity in identifying trans persons and sensitivity in identifying cis persons. #wpath2018
Harris: Placing questions on gender identity and sex assigned at birth in close proximity in questionnaires can help reduce confusion. Questions on non-binary gender identities should not conflate with gender nonconformity. #wpath2018
Harris: Telephone surveys should ask questions about gender rather than assuming. Skip patterns should be reviewed to ensure "sex specific" questions ask asked of trans people where relevant (personal note: this is also relevant to intersex inclusion). #wpath2018
Harris also commenting on issues in data reporting, using example of inclusion of trans men into HIV data on "females" (this isn't just an issue of respecting identity - it's also about social factors, such as trans men involved in gay male sex cultures). #wpath2018
Just finished my own paper! I looked at how trans patients may feel coerced into participating in clinical research if the research questions are also used (in theory or practice) as diagnostic or assessment tools, which can undermine subsequent empirical claims. #wpath2018
The final paper in this session is being presented remotely by Noah Adams. Adams is focusing on advice for ethical research with trans and gender diverse people, drawing on a published article we wrote with others. You can read it for free here. #wpath2018 ncbi.nlm.nih.gov/pubmed/29098202
Here is Florence Ashley's list of professional organisations who explicitly oppose conversion or reparative therapy targeting transgender and gender non-conforming individuals, as mentioned in Adam's talk on research ethics. #wpath2018
medium.com/@florence.ashl…
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