Still sick. I made a recording of my voice - keep in mind this is an *improvement* - four days in.
And I had the flu shot. Maybe a week and a half before I got muggle sick.

Let’s talk about #MySpooms and being “muggle sick.”
This is what some of we #spoonies call it when we get viruses 🦠 on top of chronic illnesses.
We may need a better term, but borrowing this term suits the metaphor.

In the Harry Potter universe it’s a kind of mean term for non-magical folk.
But we don’t mean it in a derogatory way though it’s sometimes derisive.

And “regular people sick” is awkward for conversation.
The shorthand is needed because it’s different when we’re sick, not just because it further complicates being ill in other ways.
For some of us, having a cold, flu, bronchitis, pneumonia etc is life-threatening.

We may have weakened immune systems, are easily dehydrated, have trouble breathing or have conditions potentially triggers by fever.
For example, with the kind of cancer I have, some lucky people like me don’t get to the point where we have a real remission.

The cancer is still there it’s just not bad enough for our systems to beat the risk of treatment.
Further, any fever above 100.5 means a trip to the emergency room.

You have no idea how irritating that is.
But my body makes abnormal versions of a type of white blood cell. When the count goes up, I tend to make more of them.
They go up when there’s infection. The body fighting infection often produces fever so...

Fun times.
But even before cancer, being muggle sick complicated my life.
My budget is minuscule and I struggle to pay my copays and prescriptions.

Now I have to find money for medicines or beg for help. I can’t afford to “tough it out.”
On top of that, this means:

- I’ll run out of my inhaler sooner
- I can’t even work ten hours a week
- So I’ll have even less money 💵
- I am afford fewer prescriptions which can make me more sick
- Which can easily snowball into more hospital or doctor visits
On and on it snowballs into a domino effect, wrecking up to 3 months of my life.

Could you afford to have a cold or flu knock out a quarter of your year?
How do you survive on 25% less income but 10 - 20% more expenses?
Being sick is expensive. Being chronically ill is darn near impossible.
That doesn’t mean it’s miserable and hopeless.

With a great support system, being muggle sick can be.. ok not great. But definitely less bad!
Whenever I have extra money I buy cold medicine or cough drops and other supplies.
I also try my best not to get sick in the first place - which all changed once my nieces and nephews moved in with me.
Get your flu shots and if you can the pneumonia vaccine. Getting a lesser strain is often a Godsend.
And if you get sick?

Do whatever you can to double-down on self care and spoonie care to shorten how long you are symptomatic as much as you can.
Then rest some more!

Pushing yourself will nearly always end in disaster. Longer suck time, increased downtime.
Sometimes you can’t help it but if you can? Make sure that extra hour or day if pushing is worth a day to a week of being out of commission.

That might be the cost.
If any of this helps you, I do take tips because I need help to cover my prescription copays ( $100/month)
& doctor visit copays ($40 -$200 a month.)

CashApp $TinuWrites
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