Profile picture
Tinu lalala lala la la @Tinu
, 29 tweets, 36 min read Read on Twitter
Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
TWITTER CHAT HASHTAGS

These chats are for those with chronic illness and/or disability.

#AbleHour - Thurs 2 pm ET

#AXSChat for #accessibility and inclusion run by @akwyz , @debraruh and @NeilMilliken,
#AutChat for autistic and similarly neurodivergent folks is 1pm pacific/4pm eastern every Sunday. Added by @endeverstar

#CripLit schedule varies. Founded by @nicolaz - co-hosted by @nicolaz and @DisVisibility.
#CreakyChats - Monthly, first Mondays 6pm ET run by @CreakyJoints

#CripTheVote schedule varies. Founded by #DisVisibility, follow @DisVisibility for dates & times.
#DSMA - Wednesdays on 9 pm run by @DiabetesSocMed.

#FilmDis founded by - 2nd Saturday of every month, 9 pm. Back from haitus January 2019.
#IBDChat - schedule unknown

#LupusChat - Sunday 3 pm Eastern founded by @TiffanyAndLupus.

Co-hosts: @Xtel007 @CaringForLupus @SynceNerd_Carli
#MedTraumaChat - varies, usually on Mon & following Wed, has afternoon & evening chat. Founded by @AlexHaagaard.

#SpoonieChat - Wed 7 pm CT/8pm ET. Original & oldest. Community commentary anytime. Founded by @DawnMGibson
#SpoonieSpeak - intermittently on Fridays

#Unrest -during group watch. Hashtag for the film by @JenBrea.
COMMUNITY HASHTAGS

This group of hashtags is for topical discussions, community, activities and/or awareness.

#AbledAlliesSay - created by @dSavannahCreate
(I contributed only the hashtag.)

#AncientAbledProverbs - created by @HijaDe2Madre

#Accessibility

#ADAPTAndResist
ANSWERS TO COMMON QUESTIONS

If you have other questions, I'm happy to answer your reply.

WHAT THE HELL THIS IS: I'm maintaining a list of ways we #spoonies and #disabled people congregate on Twitter.
WHY: I don't know why I'm doing this. Vetting these one by one takes forever.

But I find it beautiful how we support each other. And I think it's imperative that we have reference points to where we can gather.
WHEN IS IT UPDATED:

About every two months. I vet each hashtag to make sure it's active and gets updated frequently enough to foster community.
WHERE CAN I ADD TO/CORRECT THIS LIST:

Here by replying or via DM if we're mutuals. If it's already on @healthhashtags and is primarily for patients, I'll find it.
ARE YOU ONLY GOING TO DO TWITTER?

Eventually I'll include other platforms.

Once I'm covering most active hashtags and have added ways to support disabled art & entrepreneurs here, Facebook is next.
HOW YOU CAN HELP:

Send me money.

$5 helps me pick up prescriptions, $200 covers my doctor copays for 2-4 weeks.

I can't work much because of my health & that closes the gap.

CashApp $TinuWrites

Kofi
ko-fi.com/tinuwrites

Ko-fi is also where I keep PDF updates.
At some point I'll also need volunteers to help maintain this.

It would also be great if you added your project to the list.
Missing some Tweet in this thread?
You can try to force a refresh.

Like this thread? Get email updates or save it to PDF!

Subscribe to Tinu lalala lala la la
Profile picture

Get real-time email alerts when new unrolls are available from this author!

This content may be removed anytime!

Twitter may remove this content at anytime, convert it as a PDF, save and print for later use!

Try unrolling a thread yourself!

how to unroll video

1) Follow Thread Reader App on Twitter so you can easily mention us!

2) Go to a Twitter thread (series of Tweets by the same owner) and mention us with a keyword "unroll" @threadreaderapp unroll

You can practice here first or read more on our help page!

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just three indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member and get exclusive features!

Premium member ($30.00/year)

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!