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Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
TWITTER CHAT HASHTAGS

These scheduled discussions are for those with chronic illness and/or disability.

#AbleHour - Thurs 2 pm ET created by @BarbaraFranzon1

#AXSChat for #accessibility and inclusion run by @akwyz , @debraruh and @NeilMilliken, Tuesdays 8 pm GMT, 3 pm ET
#AutChat for autistic & similarly neurodivergent folks. 1pm pacific/4pm eastern every Sunday and 2 pm ET evert Tuesday. Added by @endeverstar

#BPDChat Sundays at 9 pm GMT/4 pm EST, created by @BPDFFS & @Transformental, hosted by @CarlDunnJr. Official handle @OfficialBPDChat.
#ChatMS Mondays weekly 7 pm ET, moderated by @MustStopMS & @keep__smyelin

#ChronicSex, recently changed to monthly on the 1st of every month. Moderated by @chronicsexchat.
#CripLit varies founded by @nicolaz - co-hosted by @nicolaz and @DisVisibility

#CPChatNow - co-hosts @zacharyfenell @CPInspiration & @AdventuresInCP . Wednesday evening from 8pm to 10pm ET.
#CreakyChats - Monthly, first Mondays 6pm ET run by @CreakyJoints. Check for rescheduling if the first Monday falls on a holiday.

#CripTheVote - 7 pm ET Sundays founded by @DisVisibility
#DisablednDatinChat - Wednesdays, time TBD. Founded by @Mae_DayJ

#DSMA - Wednesdays on 9 pm run by @DiabetesSocMed.
#FilmDis founded by - 2nd Saturday of every month, 9 pm.

#LupusChat - Sunday 3 pm Eastern founded by @TiffanyAndLupus.
Co-hosts: @Xtel007 @CaringForLupus @SynceNerd_Carli
#MedTraumaChat - varies, has afternoon & evening chat

#PatientChat - Fridays at 10 am PT - moderated via @PatientChat
#PTSDchat - Wednesdays weekly at 9 pm ET.

#RheumChat - Every Third Thursday of the Month at 1pm EST. Moderated by @ACRSimpleTasks.
#SpoonieChat - Wed 7 pm CT/8pm ET. Original & oldest. Community commentary anytime. Founded by @DawnMGibson

#SpondyChat - started in January 2019, next one in May. Started by @spondylitis
#unrest -varies, during group watch.

If a chat is new & the topic isn't apparent from the hashtag, I added a short description. There are a few special chats I add extra info for each time too.

Future updates will include schedules if known, hosts & descriptions of all chats.
HASHTAGS BY DIAGNOSIS/SYMPTOM/ETC

This section lists hashtags specific to illness /symptom /diagnosis /disability (or lack thereof.)

It's most helpful when you're looking for more info from others who have similar circumstances so you can compare notes or share tips.
COMMUNITY HASHTAGS

This group of hashtags is for topical discussions, community, activities and/or awareness. Most are inclusive of several chronic illnesses, or disabilities.

When focused on one area, they have a wider scope than seeking medical related info.
COMMUNITY HASHTAGS pt12

#TCNahImGood - Someone lay hands on you to pray without your permission? Get @TripleCripples escape cards, RUN, then tag them to tell them your story.

#TheHomebodiesCollective

#ThingsDisabledPeopleKnow

#UnapologeticallyDisabled
COMMUNITY HASHTAGS pt13

No seriously. 13 bloody parts. But i can't live without the community hashtags. So... last one.

#VoteForDisabledLives by @Imani_Barbarin

#WeHaveMS

#WhippleSurgery added and created by @JoyceTakako

#WithoutTheADA - created by @4WheelWorkOut
@MortuaryReport @Imani_Barbarin @BlondeHistorian @mabegoses ANSWERS TO COMMON QUESTIONS

If you have other questions, I'm happy to answer your reply.

JUST WHAT THE HELL THIS IS: I'm maintaining a list of ways we #spoonies and #disabled people congregate on Twitter.

And yes, amusing myself in the process.
WHY: Your guess is as good as anyone's. Vetting these one by one takes forever.

Kinda torturing myself because I stayed up all night, convinced I *had* to finish this today.

But it's lovely how we support each other. And imperative we have reference points to where we gather.
HOW YOU CAN HELP:

Send cash please.

Kofi
ko-fi.com/TinuWrites

$5 is a prescription, $50 a week of doc visits.

I'm getting close to being able to work again & donations close the gap in my income until that happens.

Ko-fi is also where I keep PDF updates.
At some point I'll also need volunteers to help maintain this and spread the word.

It'd also be great if you added your project.

Please don't be shy or think your project/chat is too small. Active is more important than size. 3 people is a chat. 4 is enough for a hashtag.
WHEN IS IT UPDATED:

About every 2 months.

I vet for activity & updates frequent enough to foster community. I check to make sure people talk, not companies spamming crap.

If it's not patient-focused, I exclude. The time this all takes is why it's not updated more often..
WHERE CAN I ADD TO/CORRECT THIS LIST:

Here by replying or via DM if we're mutuals. I started with the mega-resource @healthhashtags, so shout out to them and the amazing tool they built.
@healthhashtags ARE YOU GOING TO DO MORE THAN TWITTER?

Eventually I'll include other platforms.

I'm getting close to believing I'm covering most active hashtags. Then I want to add ways to support disabled art & entrepreneurs. Facebook or IG are next. The audiences are bigger.
WOULD YOU NOTIFY ME WHEN YOU UPDATE?

Sure. I have a Tiny Letter you can join.

tinyletter.com/Tinu
Thank you for supporting this project!

Again, I'm happy to answer any other questions below.

Later though. I stayed up all night. So... lots of sleep. See you in 5/6 hours.
There's like five to seven tweets after this. Where did they go LOL
I thought I did this already but ¯\_(ツ)_/¯ @threadreaderapp unroll this labor of love that took several weeks to update and 2 hours to post & I somehow still messed up:
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