, 15 tweets, 3 min read Read on Twitter
I want to tell you a very personal story about the why the so called #BornAliveAct is a vile and dangerous piece of legislation that you never should have passed.

Stick with me. This hurts. #MenForChoice
The first time I ever signed and informed consent, was the day before my daughter Emma was born. She had a huge tumor on her neck, and we honestly did not know if she had sufficient anatomy in her head and neck to you live any kind of meaningful life — or even to live at all.
The day before we sign this consent a pair of radiologists told us that they did not believe Emma had a jaw. She would not be able to swallow. She would never be able to smile.

This was in addition to the catastrophic damage to her trachea and esophagus we already knew about.
The informed consent we signed gave us two options:

1. We could authorize surgery that would give an airway. Risks included catastrophic bleeding, paralysis, inability to locate airway, and death.
This way was almost certain to leave to a long period of pain for our newborn, with many, many followup surgeries. With the likeliest outcome still being death, and if not death serious doubt of function.
The second option was the one that appeared shocking at the time but which I became incredibly grateful for.

2. We could do nothing, and Emma would pass away within minutes of birth under anesthesia having never awoken or felt any pain.
There were no other choices. We had to authorize at best an uncertain and painful future for our daughter, or we could allow her to die without pain. That was it. That was the choice.
We chose the first option-surgery. And I spent a year in the hospital. She had dozens of surgeries. And it was the right choice for us. But with any tiny variable different — had she not had a jaw, had she not had a working air way that we could use, it would have been wrong.
Senator Sasse’s dangerous bill would have robbed us of that option. It would have forced physicians to try and save us life, even if there was no hope for her to have a life.
We allow parents of older children with terminal diseases to end care and there is no hope. We see this for what it is — compassion. We know it prevents unnecessary and futile suffering in the face of cruel and pai ful diseases that medicine cannot conquer.
THIS is what abortion late in pregnancy looks like. This is people in the worst moments of their life trying to make the most compassionate choices for their children. These are courageous people parenting, tearing their own hearts out to do the best they can for their kids.
These are women ok the cusp of viability suddenly facing the loss of their own life if their pregnancy continues.
These are the moments where government has NO place, but alleged “small government” pole who want to cut the healthcare coverage so many of these impossible kids will need for their few painful and futile hours or days of life.

@SenSasse is a liar. His evil bill is a lie.
My kiddo is now seventeen. She is the joy of my life. She’s lived a life of more pain and suffering than any should, but ultimately her medical problems largely remain within the considerable skills of her surgeons.

And I remain grateful that I had the choice.
And finally, apologies for the typos. Attempted to use voice recognition. Reread the thread. Am appalled. 🙄
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