Endo is not gendered because anatomy does not have inherent gender, thus neither do diseases. Whether someone is a woman, nonbinary, intersex, trans, gender non-conforming whatever gender, they can have endometriosis.
Because cissexism still affects every aspect of diagnosing/treating Endo — patients suffer not only medically they face oppression.
Gendering led to the minimization and honestly cruel, dismissive treatment of a highly complex, invasive, and destructive disease whose primary symptom is severe pain.
Below is a great piece exploring this contrast by a nurse who runs an Endometriosis Education FB page: Nancy’s Nook. linkedin.com/pulse/176-mill…
Endometriosis has no cure. There are cases where Endo becomes asymptomatic. In fact, some people never present with pain/symptoms – but this does not mean Endo was cured and potential organ damage isn’t a concern.
Ablation, when excision would weaken uterine muscles too much, is also used in Adeno treatment if people want to keep their uterus. Adeno tissue is difficult to locate & can be dispersed.
For people with uteruses, our symptoms usually begin when our menstruation does during puberty, but can begin before puberty. So when is Endo formed? This is fundamental to this myth.
Sampson’s Theory of Retrograde Menstruation, Immune Dysfunction Theory, Theory of Mülleriosis, Embryonic Rest Theory, Stemcell Theory, Theories of Lymphatic or Vascular spread, and Coelomic Metaplasia Theory. Genetic/enviro factors likely contribute.
It’s differences are, it’s thankfully not malignant and it’s growth may be limited to where it developed in utero.
re: lymphatic/vascular spread. sciencedirect.com/science/articl…
First, we’ll run through the most common symptoms, then we’ll explore less known and rarer symptoms and how that relates to disease expression.
The first brings us to our fourth myth, it’s tied to Sampson’s RM theory: Endo builds & sheds according to patient’s cycle like Endometrium in the Uterus.
In fact, he observed Endo may be not located where blood is found.
Endometriosis, producing its own estrogen, may have its own cycles.
Well, most Endo patients experience some bowel symptoms regardless of involvement.
In those patients superficial v. deep infiltrating produce different symptoms. pacificendometriosis.com/bowel-disease/
Lung Endo: eurjmedres.biomedcentral.com/articles/10.11…
Cerebellar Endo presents with brain function symptoms/headache, is found relatively easily on scans, can be effectively treated, & the danger removed. ajronline.org/doi/full/10.22…
abnormalities, endocrine alterations and unusual expression of adhesion molecules.” centerforendo.com/endometriosis-…
that patients face. Frustratingly, pain is erroneously blamed on mental health. endometriosisnews.com/2017/09/11/fac…
However, pregnancy/childbirth actually have their own complications and symptoms most patients aren’t aware of and pregnancy/vaginal birth ultimately is not a cure.
This is not to discourage pregnancy but to inform patients of possible risks.
Proper excision may decrease risks, particularly from endometrial tissue.
Remember, Ovarian Endo is also actually the 7th or 9th location usually involved. Yet, most OBGYNS exclude the most frequented areas.
This includes: clear papule, white, red, yellow, orange, blueberry, and black.
Also if a doctor claims “invisible lesions” be suspicious. The smallest Endo lesions are about the size of a human hair & visible. endopaedia.info/subtype4.html
The Gold Standard Treatment for Endometriosis is excision surgery by an Endometriosis specialist, not a general OBGYN.
(If it works for some patients good, this isn’t criticism of them.)
Also most patients rely on prescription pain meds, narcotics, and/or cannabis to treat pain, often daily.
But this is not an exhaustive list.
The face of this disease is white cis women, but that single perspective is not remotely the extent of the experience.