, 9 tweets, 4 min read Read on Twitter
TW
Autistic people, #suicide, #depression. Thread, Important.
Are you involved in testing for depression in #autistic people? Perhaps as a researcher, or a medical professional? Please be aware of the perils of using some of the standard tests. An example. Here we go.../
bmcpsychiatry.biomedcentral.com/articles/10.11… This example is freshly published. A team gave a suicidal autistic person a questionnaire re depression and said, "Cor, you're not depressed, mate - this must be just one of them obsessive autistic things" (or words to that effect...)/
Unfortunately for the researchers, they decided to use the Beck's Depression Inventory. Here it is if you want a link to a version. ismanet.org/doctoryourspir… It asks questions, and the person chooses the response that is most accurate. It's not designed for autistic people./
And this, my friends, is how you can end up with a score of zero (not depressed) from answering completely accurately. Sample questions and potential reasons for the answer. "I get as much satisfaction out of things as I used to" (But what they have never felt satisfied?)/
Thus, a person who is so depressed that they are considering detailed plans to take their own life may score near to zero. Wrong questions.
The researchers have not only failed to realise this, but have then pinned this on autistic alleged-obsession. Guess what they'll recommend/
This research is the sort of thing that gets used to prove that autistic people need to have their routines broken. That our need for structure and rules can be a bad thing, therefore that it's important to train us to be more 'flexible'. It's bad research. /
There is serious work happening in the country on autism and suicide. Work by @Sarah_NottsUni and team for example. I've participated in some of the projects because we know this is a major concern in autistic communities.
Ensure you ask the questions correctly.
Thank you.
PS, using the PHQ-9 as a #depression indicator for #autistic patients? That's another one where many of the questions may not test usefully for such depression. A number of co-occurring conditions may affect results, & the opening question is confusing. My thoughts...
If the assessor is understanding of autism & has had good training on it, knows enough about the co-occurring condition possibilities, and knows the person well enough, it might just work. That's a lot of 'if'. And why we need that research.
Missing some Tweet in this thread?
You can try to force a refresh.

Like this thread? Get email updates or save it to PDF!

Subscribe to Ann Memmott PGC
Profile picture

Get real-time email alerts when new unrolls are available from this author!

This content may be removed anytime!

Twitter may remove this content at anytime, convert it as a PDF, save and print for later use!

Try unrolling a thread yourself!

how to unroll video

1) Follow Thread Reader App on Twitter so you can easily mention us!

2) Go to a Twitter thread (series of Tweets by the same owner) and mention us with a keyword "unroll" @threadreaderapp unroll

You can practice here first or read more on our help page!

Follow Us on Twitter!

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just three indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3.00/month or $30.00/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!