, 9 tweets, 8 min read Read on Twitter
There is so much to unpack about gender and #chronicillness, I barely know where to begin. But let's give it a go. Data THREAD first, personal experiences second. (1/9) #millionsmissingspeakout #pwME @MEActNet
Up until very recently, the majority of medical research has been performed on men. It used to be against the law to include most women in clinical trials. Even after that law was overturned, a second had to be enacted requiring we be included. #pwME (2/9) tinyurl.com/y35rtwzv
The difference in the way women present symptoms and the ignorance around this kills.
When women have heart attacks, for example, the typical symptoms veer sharply from what med students learned from their textbooks. (3/9) #millionsmissingspeakout #pwME psmag.com/social-justice…
Expectation has meaning. Male patient's symptoms are typical & therefore sensible. Women's symptoms are not expected & therefore more likely viewed as illegitimate. The upshot: women's conditions are painted as "mysterious" &/or women must habitually exaggerate. (4/9) #pwME
This plays into the Victorian idea that women convert their feelings into physical ailments. That women's symptoms are less *real* somehow is so prevalent that women wait on average 16 more min for pain meds in the ER than men. #pwME (5/9) tinyurl.com/yxvfps77
Why won't we learn better? @mayadusenbery's answer:
"...If a woman is going to a doctor and describing symptoms and being told it's just stress, and maybe she's depressed, she'll usually go to another one and another one..." (6/9) #millionsmissingspeakout #pwME
Maybe 4 drs later she gets the correct diagnosis, Dusenbery continues. But those she saw along the way will believe they made the right call... & that women with 'unusual' complaints that are 'really nothing' are ubiquitous. (7/9) #millionsmissingspeakout #pwME #BelieveWomen
This also means drs are likely to treat future female patients similarly.
Clinicians are also generally unaware of their own inherent bias, though it significantly affects the way they treat & diagnose their patients. (8/9) #pwME #millionsmissingspeakout ncbi.nlm.nih.gov/pmc/articles/P…
Diseases that affect more women than men, like #pwME, #Fibro, #Lupus, #MCAS, and #autoimmune conditions are also underfunded in relation to their disease burden. We're not alone. And we must fight together. (9/9) #millionsmissingspeakout #believewomen tinyurl.com/y35rtwzv
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