, 9 tweets, 2 min read Read on Twitter
Clinicians, asking for consent isn't that hard. I'm not talking informed consent forms. I'm not even talking consent to touching for procedures (which is alarmingly low). I'm talking consent to share information - which at this point means asking consent to upload forms to an EHR
My trust feels far too violated on too many levels because of actions taken without my consent. Actions healthcare providers & policy makers & IT vendors take for granted. They call it interoperability & say transferring our info without consent will help us...
I give information freely & openly on many occasions. But that's MY CHOICE. When info is uploaded to an EHR, I have no choice. I then face discrimination & biases and harm because I trusted someone to read something I wrote and they decided every other doctor should have access.
Sure there's the "minimum necessary" rule under #HIPAA. But it's broadly interpreted by the ineffective and provider friendly OCR. @HHSOCR isn't here to protect our enforce patient rights. @CMSGov and @ONC_HealthIT don't care about our privacy.
Anyone who accesses Epic, has the ability to get info I didn't consent to share. Anyone.

How do I know, because it has happened and continues to happen. Especially as Epic ruin as it's Care Everywhere HIE platform.

Patients get hurt. Patients lose trust. No one listens.
For all I know, my abuser can look up my info every single day. I don't know which EHR his practice uses, but as all of them become connected under this push for interoperability, I have no control. I have no one I can trust.
I can't express how violated I feel right now.
Apologize for typos. Just overwhelmed.
Apologize for typos/autocorrects/swype. Just overwhelmed.

Above *Especially as Epic pushes it's Care Everywhere HIE platform
Missing some Tweet in this thread?
You can try to force a refresh.

Like this thread? Get email updates or save it to PDF!

Subscribe to Erin Gilmer
Profile picture

Get real-time email alerts when new unrolls are available from this author!

This content may be removed anytime!

Twitter may remove this content at anytime, convert it as a PDF, save and print for later use!

Try unrolling a thread yourself!

how to unroll video

1) Follow Thread Reader App on Twitter so you can easily mention us!

2) Go to a Twitter thread (series of Tweets by the same owner) and mention us with a keyword "unroll" @threadreaderapp unroll

You can practice here first or read more on our help page!

Follow Us on Twitter!

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just three indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3.00/month or $30.00/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!