, 9 tweets, 2 min read Read on Twitter
Clinicians, asking for consent isn't that hard. I'm not talking informed consent forms. I'm not even talking consent to touching for procedures (which is alarmingly low). I'm talking consent to share information - which at this point means asking consent to upload forms to an EHR
My trust feels far too violated on too many levels because of actions taken without my consent. Actions healthcare providers & policy makers & IT vendors take for granted. They call it interoperability & say transferring our info without consent will help us...
I give information freely & openly on many occasions. But that's MY CHOICE. When info is uploaded to an EHR, I have no choice. I then face discrimination & biases and harm because I trusted someone to read something I wrote and they decided every other doctor should have access.
Sure there's the "minimum necessary" rule under #HIPAA. But it's broadly interpreted by the ineffective and provider friendly OCR. @HHSOCR isn't here to protect our enforce patient rights. @CMSGov and @ONC_HealthIT don't care about our privacy.
Anyone who accesses Epic, has the ability to get info I didn't consent to share. Anyone.

How do I know, because it has happened and continues to happen. Especially as Epic ruin as it's Care Everywhere HIE platform.

Patients get hurt. Patients lose trust. No one listens.
For all I know, my abuser can look up my info every single day. I don't know which EHR his practice uses, but as all of them become connected under this push for interoperability, I have no control. I have no one I can trust.
I can't express how violated I feel right now.
Apologize for typos. Just overwhelmed.
Apologize for typos/autocorrects/swype. Just overwhelmed.

Above *Especially as Epic pushes it's Care Everywhere HIE platform
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