, 26 tweets, 16 min read Read on Twitter
Thank you so much for generous responses to my enquiry about research re #EoLCare for #LGBTQ+ people. I'm going to share what I've been reading as a thread in case it's useful for others (incl an unroll). Forgive raw & inconsistent ref style and add suggestions if you have them
Marie Curie UK (2017) Hiding Who I Am: The reality of end of life care for LGBT people. Available at: mariecurie.org.uk/globalassets/m…
#EoLCare for #LGBTQ+ people
Harding R, Epiphaniou E, Chidgey-Clark J (2012). Needs, experiences and preferences of sexual minorities for end-of-life care and palliative care: a systematic review. Journal of Palliative Medicine.15: 602-11
#EoLCare for #LGBTQ+ people
London School of Economics (2015) Equity in the Provision of Palliative Care in the UK: Review of Evidence, pssru.ac.uk/archive/pdf/49…
#EoLCare for #LGBTQ+ people
Bristowe K, Marshall S, Harding R (2016). The bereavement experiences of lesbian, gay, bisexual and/or trans* people who have lost a partner: A systematic review, thematic synthesis and modelling of the literature. Palliative Medicine
#EoLCare for #LGBTQ+ people
Bristowe, K., Hodson, M., Wee, B., Almack, K., Johnson, K., Daveson, B. A., … Harding, R. (2018). Recommendations to reduce inequalities for LGBT people facing advanced illness: ACCESSCare national qualitative interview study. Palliative Medicine, 32
#EoLCare for #LGBTQ+ people
Hunt, J., Bristowe, K., Chidyamatare, S., & Harding, R. (2019). ‘So isolation comes in, discrimination and you find many people dying quietly without any family support’: Accessing palliative care for key populations – an in-depth qualitative study.
#EoLCare for #LGBTQ+ people
Hunt J, Bristowe K, Chidyamatare S, et al
‘They will be afraid to touch you’: LGBTI people and sex workers' experiences of accessing healthcare in Zimbabwe—an in-depth qualitative study
BMJ Global Health 2017;2:e000168.
#EoLCare for #LGBTQ+ people
NHS (2012) The route to success in end of life care – achieving quality for lesbian, gay, bisexual and transgender people
Available at: macmillan.org.uk/documents/abou…
#EoLCare for #LGBTQ+ people
Care Quality Commission (2016) A different ending: Addressing inequalities in end of life care, cqc.org.uk/sites/default/… FINAL_3.pdf
#EoLCare for #LGBTQ+ people
The Scottish Government (2016a) Strategic Framework for Action on Palliative and End of Life Care 2016-2021, gov.scot/Resource/0049/…
#EoLCare for #LGBTQ+ people
The Scottish Government (2016b) Strategic Framework for Action on Palliative and End of life Care 2016- 2021: Equality Impact Assessment, gov.scot Resource/0050/00500033.pdf
#EoLCare for #LGBTQ+ people
The Scottish Government (2016c) Strategic Framework for Action on Palliative and End of Life Care: Equality Impact Assessment Results, gov.scot Resource/0050/00500033.pdf
#EoLCare for #LGBTQ+ people
Centre for Policy on Ageing (2016) Diversity in older age – Older Lesbian, Gay and Bi-Sexula people and Older Transgender people. Available at: cpa.org.uk/information/re…
#EoLCare for #LGBTQ+ people
Knocker S (2012) Perspectives on ageing: lesbians, gay men and bisexuals, Joseph Rowntree Foundation . Available at: ageing-lesbians-bisexuals-gay-men-summary.pdf
#EoLCare for #LGBTQ+ people
Knocker, S. (2006) The whole of me... Meeting the needs of older lesbians, gay men and bisexuals living in care homes and extra care housing. London: Age Concern openingdoorslondon.org.uk resources/The%20Whole%20Of%20Me.pdf
#EoLCare for #LGBTQ+ people
Cloyes, K., Hull, W. & Davis, A (2018) Palliative and end of life care for lesbian, gay, bisexual and transgender cancer patients and their care givers. Semin Oncol Nurs 34 (1) 60-71
#EoLCare for #LGBTQ+ people
Farmer DF, Yancu CN. Hospice and palliative care for older lesbian, gay, bisexual and transgender adults: The effect of history, discrimination, health disparities and legal issues on address- ing service needs. Palliat Med Hosp Care Open J. 2015; 1(2)
#EoLCare for #LGBTQ+ people
Almack, K., Yip, A., Seymour, J., Sergeant, A., Patterson, A. & Makita, m. (2015). The Last Outing: exploring end of life experiences and care needs in the lives of older LGBT people. Final Report. Available at: nottingham.ac.uk/research/group…
#EoLCare for #LGBTQ+ people
Almack, K and Simpson, P (2014) Care home survey: knowledge, attitudes and practices concerning LGBT residents, scie-socialcareonline.org.uk/care-home- survey-knowledge-attitudes-and-practices-concerning-lgbt-residents/r/ a11G0000003D0mrIAC
#EoLCare for #LGBTQ+ people
Almack K., Seymour, J. and Bellamy, G., 2010. Exploring the impact of sexual orientation on experiences and concerns about end of life care and on bereavement for lesbian, gay and bisexual elders Sociology. 44(5), 908-924
#EoLCare for #LGBTQ+ people
Lam, V. (2017) LGBTQ at the End of Life: Needs and Challenges. Available at: pallimed.org/2017/11/lgbtq-…
#EoLCare for #LGBTQ+ people
Kimmel D, Steven D, eds. Lesbian, gay, bisexual, and transgender aging: Research and clinical perspectives. New York, NY, USA: Columbia University Press; 2006
#EoLCare for #LGBTQ+ people
Acquaviv, K. (2017) LGBTQ-Inclusive Hospice and Palliative Care. NY. Harrington Park Press
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