I have a genetic condition very similar to #JFKs #AddisonsDisease.
I don't know why I didn't think of this before, but #JFKJr was likely a carrier of the fkd up gene. If he & Caroline had kids, it could have very well shown up in their kids.
Something to think about. 🤔
My condition is Salt-Wasting Congenital Adrenal Hyperplasia, #SWCAH or #ClassicCAH.
It's the most severe form of CAH.
I can't explain how it's similar to Addison's because I ain't a dr. But I can tell you, the pain that #JFK was in... It's very real.
Lack of natural cortisol means replacing it with synthetic cortisol, which in the President & myself both had caused more problems than I think it's worth at times.
Back pain. Migraines. Gum disease. Degenerative disc disease.
Constant state of stress (This one gets to me worse than the physical pain).
Plus there's having to carry an emergency shot kit everywhere you go because it's very rare & most med pros get maybe 6 hours study time on CAH.
Pretty sure #JFK had something similar, although he could probably post the picture right side up 😂😉
#SWCAH is entirely genetic. That means that my parents are both unaffected carriers & through some weird twist of fate, met, got married & had 2 daughters.
My sister is the oldest, 15 years older than me & born just before the med community had it figured out.
Meaning, even though I almost died before they sent me to LeBonheur Children's Hospital, she would have almost certainly died.
I'm not especially fond of her but I gladly accept my fate with #SWCAH as opposed to her having been the one to be born with it.
Overall normal life span-- with proper treatment, of course--but yes there is a lot of pain involved with it. Oh, and a fever that would be slight to you... Is deadly to us CAHers. 101* & I get delirious.
Lots of extra salt & electrolytes.
Not sure what my point is.
Maybe some #Anon who believes #JFKJr is alive can do some digging, though.
On the other hand, if he *is* alive, we won't know it until the perfect time anyway.
At least I know door a fact that I'm immune to being killed for #Adrenochrome! 😉 No natural adrenalized blood in this girl!
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