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Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
*Hashtags For Personal Narratives

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
*Twitter Chat Hashtags

These are scheduled discussions for those with chronic illness and/or disability. Times are Eastern unless otherwise noted.

#AbleHour - Thursdays 8 pm GMT hosted by @cmcoughlan (Corrected since previous update)
#AXSChat for #accessibility and inclusion run by @akwyz, @debraruh and @NeilMilliken. Tuesdays 8 pm GMT, 3 pm ET

#AutChat for autistic and similarly neurodivergent folks is 1pm pacific/4pm eastern every Sunday and 2 pm ET every Tuesday. Added by @endeverstar
#BPDChat Sundays at 9 pm GMT/4 pm EST, created by @BPDFFS & @Transformental, hosted by @CarlDunnJr. Official handle @OfficialBPDChat.

#ChatMS Mondays weekly 7 pm ET, moderated by @MustStopMS & @keep__smyelin
#ChronicSex, recently changed to monthly on the 1st of every month. Moderated by @chronicsexchat.

#CripLit varies founded by @nicolaz - co-hosted by @nicolaz and @DisVisibility.

#CPChatNow- co-hosts @zacharyfenell @CPInspiration & @AdventuresInCP. Wed evening from 8 to 10pm ET.
#CreakyChats - Monthly, first Mondays 6pm ET run by @CreakyJoints.
Check for rescheduling if the first Monday falls on a holiday.

#CripTheVote - 7 pm ET Sundays founded by @DisVisibility
#DisablednDatinChat - On hiatus. Normally first Wednesday of the month at 9pm ET. Founded & hosted by @Mae_DayJ, co-hosted by @Tinu (me) & @SethFan4Ever

#DSMA - Wednesdays on 9 pm run by @DiabetesSocMed.

#FilmDis founded by - 2nd Saturday of every month, 9 pm.
#LupusChat - Sunday 3 pm Eastern founded by TiffanyAndLupus.
Co-hosts: @Xtel007 @CaringForLupus @SynceNerd_Carli

#MedTraumaChat - varies, has afternoon & evening chat
#MigraineChat -contributed by the moderator, @beth_morton - meets the first Monday of the month at 1 pm ET

#PatientChat - Fridays at 10 am PT - moderated via @PatientChat
#PNDHour Wednesday’s 8 to 9 pm gmt founded by @PNDandMe

#PTSDchat - Wednesdays weekly at 9 pm ET.

#PTSDandBeyond - Mondays 8 pm ET run by Dr. @DebraLindh
#RheumChat - Every Third Thursday of the Month at 1pm EST. Moderated by @ACRSimpleTasks.

#SaludTues - Tues 1 pm Eastern
@ACRSimpleTasks #SpoonieChat - Wed 7 pm CT/8pm ET. Original & oldest. Community commentary anytime. Founded by @DawnMGibson

#SpondyChat - started in January 2019 by @spondylitis

#unrest -varies, during group watch.
@ACRSimpleTasks @DawnMGibson @spondylitis *Hashtags By Condition/ Diagnosis/Symptom/Etc

This next section lists hashtags specific to illness /diagnosis /disability (or lack thereof.)

It differs from the upcoming *Community section because mostly people are focused on one specific condition.
Many of the crowdfunding/funding hashtags apply to specific situations. Please take care to make sure you are using them correctly.
Good policy when you're not in need? Browse those hashtags and boost a person at random who isn't getting much traction.
*Community Hashtags

This group of hashtags is for topical discussions, community, activities and/or awareness. Most are inclusive of more than one chronic illness, disability or diagnosis.
*Community/Awareness A - L

#4OutOf5 CW:sexual assault, created by @Imani_Barbarin

#AbledAlliesSay - created by @dSavannahCreate

#AbledsAreWeird - created by @Imani_Barbarin - now with t-shirts!
#spoonie
#spoonies
#SpoonieLife
#SpoonieHood
#SpoonieHits
#SpoonieProblems

#StopSarcoidosis
#SuckItAbleism
#StrawBan

#TCNahImGood - Someone lay hands on you to without your permission? Get @TripleCripples escape cards, RUN, then tag them to tell them your story.
Okay, next up, Honorable Mentions and FAQs, including how to add to this list.

Please keep in mind that

- This is a volunteer project I do for free,
- It's not meant to be comprehensive - there are many hashtags purposely not included
- I welcome your suggestions.
Honorable Mentions

These are hashtags I considered adding which didn’t quite make it due to:

low activity,
seasonal/event related,
not enough people updating,
too much non-patient content,
or otherwise not quite right .

They may be added permanently in future updates.
@mattbc ***FAQS

If this is your first time reading this list, you've probably noticed that your favorite hashtag may not be included.

I start with a cluster of conditions, say autoimmune diseases, and cover the top tags that fit. Then next round, I do a deeper dive.
So you may see Blood Cancer and CLL as hashtags, but not see Chronic Lymphocytic Leukemia until the next update- or not at all if there's mostly spam or doctors talking in the thread, for example.

Anyway... more FAQs below, feel free to reply where ever or DM with other ?s.
*And Just What The Hell This Is?

I'm maintaining a list of ways we #spoonies and #disabled people congregate on Twitter to support each other, find or exchange information and form community.

And yes, amusing myself in the process.
It's now one of the many projects of #EverywhereAccessible, (@EveryAccess) founded in 2019.

We have 20 projects we're launching in 2020 with the intention of seeing the world become accessible.

We're 20% of the world. We should be able to access all of it, like anyone else.
**But WHY?

Every time I ask myself the main reason? It changes.

Today, it's about giving back to the community that gives to me. To have something tangible to point at to remind me that just because i don't make the money I used to, doesn't mean I'm useless.
Community is important. If we can find each other, we can get so much more of what we need from there.
**How You Can Help

Well first, send cash please? :-)

Kofi
ko-fi.com/TinuWrites

Cash App
cash.me/$TinuWrites

PayPal
paypal.com/paypalme2/Tinu…

Gradually I’m getting closer to full time remote work, now having 7 chronic illnesses not including the chronic cancer.
As I've said, this is a labor of love, I do for free. Any contribution gets you a PDF copy and lifetime updates.

This become one of the ways I raise extra income to close the gap between what I earn from selling ebooks, classes and writing.

Even a dollar here and there helps!
*When and how is it updated?

Quarterly, approximately.

Over the months I collect active patient-focused hashtags in a file. Then they are vetted tags for recent activity, as well as updates frequent and varied enough to foster community.
Then I look for things like people posting every few days & make sure those posts aren’t just spam.

You may have noticed that I capitalize each word in the hashtag. This makes it more readable and accessible, esp for people using screen readers.
After about a day of updates, I publish to PDF.

*Where/how can you add to this list or correct/update a listing?

There are three ways.
You can:

1- Respond to the latest Twitter thread version on Twitter.

2- Contact me via Twitter Direct Message on @Tinu if we're mutuals, and @DisHashtags if we’re not.
3 - Add #Distags to a tweet that uses your hashtag when you create a new one or want to add/update/correct information, and follow #DisHashtags to see changes between quarterly updates and to this document.
I started with the mega-resource Symplur Hashtags (@healthhashtags), so shout out to them and the amazing tool they built. Great account to follow!

Most comprehensive resource for medical related hashtags on the web, period. If you have a new hashtag, add it there too!
Are You Going To Do More Than Twitter?

Eventually I'll include other platforms.

I'm getting close to believing I'm covering most active hashtags. Then I want to add ways to support disabled art & entrepreneurs. Facebook or IG are next after that.
*WOULD YOU NOTIFY ME WHEN YOU UPDATE?

I have a Tiny Letter you can join.

tinyletter.com/Tinu. Or of course, you can subscribe to my ko-fi- ko-fi.com/TinuWrites - and get PDF updates for life!

Thank you for supporting this project!
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