1. I gave my everything to fighting the exercise stigma M.E. patients face since I joined the community. In response I have been gaslighted by MEA who spread lies about me, twisted the story and failed to consider for even a nano second my upset with their actions then blocked me
2. I’ve been called hateful by another.
I will attach links to original posts at the end. I stand by absolutely everything I said and I have nothing to hide. It’s MEA who deleted shared concerns by other patients.
I will attach links to original posts at the end. I stand by absolutely everything I said and I have nothing to hide. It’s MEA who deleted shared concerns by other patients.
3. If an organisation promotes a profile on their platform, they cannot say they don’t necessarily agree with the profile much like you wouldn’t share a racist and then say their views don’t represent yours (extreme example but illustrates the point).
4. I have also been shown today the lady in question runs a pay for subscription service selling exercise for the chronically ill as someone who recovered from ME by exercise!!!!! MEA ADVERTISED HER PROFILE TO PWME!!!!!! THIS IS SO SHOCKING I CAN BARELY SPEAK!!!!!!
5. This argument does not reflect on MEA as a whole but on their social media manager who committed a fatal PR error and then instead of rectifying it, vilified the patients who complained instead.
6.
This has ZERO to do with not looking sick as some have suggested! This is not about someone having recovered enough to be able to exercise! This is ONLY and ONLY about promoting exercise as means of recovery to patients who have been SEVERELY HARMED BY BEING TOLD TO EXERCISE
This has ZERO to do with not looking sick as some have suggested! This is not about someone having recovered enough to be able to exercise! This is ONLY and ONLY about promoting exercise as means of recovery to patients who have been SEVERELY HARMED BY BEING TOLD TO EXERCISE
7. Next time someone asks why you haven’t pushed yourself to exercise and recovered like the profile MEA promoted....
It might be time for me to move on with my life and leave advocacy behind. I have been treated like absolutely garbage and I am worth more than that. A lot more
It might be time for me to move on with my life and leave advocacy behind. I have been treated like absolutely garbage and I am worth more than that. A lot more
A post about why exercise is dangerous in M.E. recovery instagram.com/p/B-pm5jSjpiJ/…
And about CRITICAL difference between being better thus more able and doing more in order to get better
instagram.com/p/B-rnTlXjvJ6/…
instagram.com/p/B-rnTlXjvJ6/…
