Peter Wells Profile picture
May 13, 2020 18 tweets 11 min read Read on X
Looking forward to reading trial reports (both Yorks & IoW). In 21c no one sensible would roll out a new public health service nationally without sharing trial reports for both democratic scrutiny & to give citizens an informed view on stuff. Would they? thetimes.co.uk/article/nhs-co…
I mean it's fairly obvious that in absence of trial reports then we risk *checks notes* inaccurate reports about effectiveness and trustworthiness of new service that could unfairly damage public trust. Far better to trust the public & give them information and power.
Checking in on reports from trial of new English test & contact tracing service on IoW. Some stuff in press but mostly about recruitment of contact tracers & # of downloads of app.

Nothing on effectiveness in tackling Coronavirus that I can see?
Still nothing on overall test & trace strategy, trial design & no progress reports on the NHS (app-focused) website >insert sad face here<

covid19.nhs.uk
The github repos for the app has minor changes to security text & an API key for iOs. No visible change in Google play store. (I didn't check Appleappstore, expect same).

github.com/nhsx/COVID-19-…

github.com/nhsx/COVID-19-… ImageImage
Looks like a data dictionary has been added, that's new to me github.com/nhsx/COVID-19-…

github.com/nhsx/COVID-19-…

(Back-end source code was committed to release but is still missing) ImageImageImage
But to repeat myself _again_, the bigger gap is the overall test+tracing strategy, trial design & evaluation reports, & programme progress reports.

Everyone knows how important this is & everyone* wants this to work. Cut down the noise. Share the progress :)

* except silly ppl
Has anyone checked if there is any statistically meaningful variation between IoW & other places since intro of app? Evidence is good.

“Many have noted a marked increase in the number of people out and about on the Isle of Wight in the last two weeks”

onthewight.com/isle-of-wight-… ImageImage
(Yes, I looked on the NHS app website,covid19.nhs.uk, first. No, there was no update on the trial there. Yes, I think trials are necessary and good. Yes, I think sharing results from trials are vital both for trial participants and others. #faqs)
(Yes, I’ve got a maths degree. No, I didn’t do much statistics - I like(d) the pure maths stuff. Yes, it was a 2:2. Yes, that still counts. Yes, it was a very very long time ago. Yes, zero had been invented then - cheeky blighter.)
*does daily check on NHSX blogs nhsx.nhs.uk/blogs/ and dedicated Coronavirus website website covid19.nhs.uk for any update from Isle of Wight trial*

*finds nothing*

*sets alarm for tomorrow*
(Btw today I've seen the IDOX, NHSX contact tracing & Cummings' alleged sister story in two local Facebook groups and two FB friend's posts. Openness & facts are not the only tool against conspiracah stuff, but they can help)
Heard a bit at today’s UK gov Coronavirus press conference about what has been learnt from the trials of app and broader track/trace activities in Isle of Wight. Great!

*clicks refresh to learn from trial reports*

*puts on sad face clown makeup* ImageImageImage
My daily check on gov.uk websites for outputs from Isle of Wight trial of both app and broader test + trace activities shows nothing.

ICYMI then Isle of Wight journalists have also been ignored by senior folk at NHSE & PHE for 8 days.

onthewight.com/why-are-questi… Image
DHSC has told @onthewight that they’ll be publishing some data from the IoW trial of NHSX contact tracing app “near the end of next week” onthewight.com/why-are-questi… Image
I missed that Bob Seeley, IoW MP, has been given some numbers on UK contact tracing app trial. Not a real evaluation though.

(Before hares start running I'm assuming the bit about needing the app to get to mainland is a misspeak that @NHSX will clear up)

countypress.co.uk/news/18481960.… ImageImageImage
I see @onthewight reports that despite promises from DHSC a week and a bit ago their questions about contact tracing app trial evaluation have not yet been answered. In a subplot the council also has data but won't share as it's "not our data"

onthewight.com/simple-questio… ImageImage
@onthewight Meanwhile BBC reports that a second version of the contact tracing app will be launched?trialled? In IoW next week, with more symptom questions & new testing process bbc.co.uk/news/technolog… Image

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More from @peterkwells

May 6, 2022
"Government to announce data reform bill in Queen's Speech to deliver 'Brexit dividend'" < such fun!

news.sky.com/story/governme…
If anyone in govt has evidence that a change in data protection legislation will help meet an "urgent need to raise GDP" in any way other than a short-term burst in services to update org-level data policies - & cookie banners, lol - then I'd love to see their modelling...
Quite sad to see the fears, and article as whole, exclude the fear that weakening data protection legislation - legislation which exists to protect people, not data - will lead to harm to people, and that that harm will not be equally distributed....
Read 5 tweets
May 4, 2022
Ah, health data trusts "independent of the NHS and industry" to "allow startup companies access to NHS data" "as a way of overcoming concerns about confidentiality and the use of private information"

theguardian.com/society/2022/m… Image
Rather than "overcoming concerns" I think people meant to say "using a new legal structure to sidestep existing legal forms of governance that are intended to protect both patient's rights and delivery of NHS services"
There are some useful idiots around data trusts in UK who still don't quite get that even though in some contexts they _might_ improve outcomes for ppl that there are other contexts where they're being used as a tool to do an end run around existing governance for commercial gain
Read 5 tweets
Oct 10, 2020
Ah. Job ad for ONS' "Director of [UK] Integrated Government Data Programme [IGDP]".

Sponsored both by ONS, which is independent of Gov, & COO for civil service, who is not.

civilservicejobs.service.gov.uk/csr/jobs.cgi?j… << PDF here didn't work on my devices, one here did >> sandersonplc.com/ONS/
The job ad says responsible for both IGDP *&* for strategy to transform way data is managed, used & shared across govt.

The job pack says reporting to Deputy National Statistician. No mention of either the planned govt Chief Digital Officer or Chief Data Officer.
Another responsibility is "increase public acceptability of the use of data in government" << obviously sometimes that will mean using less data than now, or than other officials want. I hope they both have power, know how to use it, & can speak truths to others who use it too
Read 10 tweets
Sep 24, 2020
Status: listening to Tom O'Riordan, Leeds Council CEO, share what he learnt from working nationally with NHS test+trace
I asked about data flows between the new app and local public health, I am *so* predictable.

Tom praises app, & privacy-preserving approach for contacts & check-in at places.

He agrees with Newham Council that central govt need to give local gov access to data collected by app
This Wired piece references the issues Newham repeatedly raised wired.co.uk/article/nhs-co…

This BBC piece talks about some of data app collects that could be useful, it doesn't say why NHS test+trace haven't shared it so far and when they will

bbc.co.uk/news/technolog…
Read 4 tweets
Sep 24, 2020
"The Government Digital Service truly was once world-beating. What happened?"

theguardian.com/society/2020/s…

Hmmmm....
There's lots in here that's right - there was some great work and lots of Whitehall pushback - but there are lots of omissions of where GDS got it wrong.
Not just failed big projects - hello Verify, UC, RPA - there was too much focus on one lever 'civil servants building transactional services that end in a website' to change govt

While ppl would rave about ease of ordering a driving licence online, there were closed post offices
Read 8 tweets
Sep 24, 2020
Update!

The steps from The App to discover what to do if risk level is high have been reduced by one, now 5 clicks, by addition of direct links to gov.uk local lockdown restriction pages on this FAQ page
faq.covid19.nhs.uk/article/KA-011…
As the app has user's postcode area I suspect that humans that design computers could make it take a user straight to either the correct gov.uk page for their area or, better IMHO*, a local council page.

* better as local councils offer support as well as info
(Yes, I know some postcode areas cross council boundaries. Someone in GDS must have built a widget to identify & help users thru those cases. Right? Oh...)
Read 4 tweets

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