@PainPtFightBack @Amy_L_Partridge @Danniedean5 @LelenaPeacock @speakingabtpain @headdock @SandyHiltonPT @Farmer_MindBody @j3nnac @aander1987 @Cripp4lyfe @Carrionflower1 @Seaglas15896020 @tal7291 @devrajoyPT @StefanKertesz @AmerMedicalAssn Thanks love. That was a difficult yet rewarding day for all of us, I think. Difficult because while it was nice to be with a couple hundred of 'our people' in solidarity, hearing the stories from the Sickle Cell and Adhesive Arachnoiditis communities .. . man, that was tough.
@PainPtFightBack @Amy_L_Partridge @Danniedean5 @LelenaPeacock @speakingabtpain @headdock @SandyHiltonPT @Farmer_MindBody @j3nnac @aander1987 @Cripp4lyfe @Carrionflower1 @Seaglas15896020 @tal7291 @devrajoyPT @StefanKertesz @AmerMedicalAssn For those who were not there, here's a youtube video of my panel presentation:
And there is a transcript here: funchefchick.com/2018/07/12/fda…
And there is a transcript here: funchefchick.com/2018/07/12/fda…
@PainPtFightBack @Amy_L_Partridge @Danniedean5 @LelenaPeacock @speakingabtpain @headdock @SandyHiltonPT @Farmer_MindBody @j3nnac @aander1987 @Cripp4lyfe @Carrionflower1 @Seaglas15896020 @tal7291 @devrajoyPT @StefanKertesz @AmerMedicalAssn AND ONE MORE THING. The FDA put up a slide of 'alternative pain treatments tried" that day which everyone there had been asked to indicate what they'd tried. PT, talk therapy, CBT, Massage, acupuncture, group therapy, medical marijuana, Mindfulness, yoga, etc. The usuals. 1/4
@PainPtFightBack @Amy_L_Partridge @Danniedean5 @LelenaPeacock @speakingabtpain @headdock @SandyHiltonPT @Farmer_MindBody @j3nnac @aander1987 @Cripp4lyfe @Carrionflower1 @Seaglas15896020 @tal7291 @devrajoyPT @StefanKertesz @AmerMedicalAssn I was still at my panel seat w/my mic & I couldn't help myself; I interrupted to say: ALL the things on that list save maybe PT & talk therapy? NOT COVERED by insurance. There are not studies which conclusively prove these alts to be effective for chronic pain yet . . . 2/4
@PainPtFightBack @Amy_L_Partridge @Danniedean5 @LelenaPeacock @speakingabtpain @headdock @SandyHiltonPT @Farmer_MindBody @j3nnac @aander1987 @Cripp4lyfe @Carrionflower1 @Seaglas15896020 @tal7291 @devrajoyPT @StefanKertesz @AmerMedicalAssn we are asking people w/chronic pain -many on fixed incomes- to cover costs for these alternatives OUT OF POCKET rather than continue w/safe, effective meds which are covered by insurance & which they have been DENIED. They are paying for the privilege of ineffective care. 3/4
@PainPtFightBack @Amy_L_Partridge @Danniedean5 @LelenaPeacock @speakingabtpain @headdock @SandyHiltonPT @Farmer_MindBody @j3nnac @aander1987 @Cripp4lyfe @Carrionflower1 @Seaglas15896020 @tal7291 @devrajoyPT @StefanKertesz @AmerMedicalAssn We are shifting the burden of costs for treating chronic pain away from proven (& covered) methods to expensive & unproven alts. Resulting in $$ devastating people in pain & STILL leaving them in agony. HOW DOES THIS MAKE SENSE?! This got the most applause I had all day. 4/4
