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Ed Yong is not here Profile picture
@edyong209
Aug 22, 2020 • 5 tweets • 3 min read • Read on X
There's been a wave of good pieces on COVID-19 long-haulers in the last few weeks. Here's @tanyabasu in MIT Tech Review on the Body Politic group that organized to research themselves. 1/

technologyreview.com/2020/08/12/100…
At Buzzfeed, @bri_sacks wrote about the group's recent call with the WHO, as part of their continued efforts to get recognition. 2/

buzzfeednews.com/article/briann…
This one's mine, on how the long-haulers have changed their own landscape over the last couple of months.

I love that all these stories portray the group as protagonists of their own stories, and not victims without agency. 3/

theatlantic.com/health/archive…
I hope more stories come out. And as they do, this @fi_lowenstein piece on how to ethically and sensitively report on people who have very little energy to spare will be increasingly important. /Fin

cjr.org/covering_the_p…
PS: @rddysum has also been doing great long-hauler stories at the WSJ. See her own thread for her stories thus far:

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More from @edyong209

Ed Yong is not here Profile picture
Jul 28, 2023
Some news: After 8 years & 750 stories, I've decided to leave The Atlantic. Today's my last day.
Being a writer means you can’t say things like "I can’t tell you what this means" cos, well, I can. That's kind of the point of me. So here’s an attempt at looking back & forward: 1/
I’m really proud of the work I did here. Hagfish. Lichens. Endlings. Source diversity. 60+ pandemic pieces. Long COVID especially. More important than the awards, I know this work helped people, and it changed my understanding of what journalism can do & whom it should serve. 2/
That work depended on a team. All my love to Sarah Laskow & Ross Andersen, dear friends & amazing editors; everyone on the sci/tech/health desk, still the best in the biz; and the indefatigable copy-edit, fact-check, art, audience & comms teams. 3/
Read 9 tweets
Ed Yong is not here Profile picture
Jul 27, 2023
🛑I wrote about what “fatigue” really means for people with long COVID and ME/CFS, and why this profoundly debilitating symptom is so often misunderstood and trivialized.

(This piece also covers PEM.) 1/

theatlantic.com/health/archive…
First, an important note. I’ve been told that this piece will be free to read for 24 hours, but will then go behind the paywall. Best I could do. If you’re not a subscriber and this is useful to you or your loved ones, I’d suggest saving a copy ASAP. 2/ theatlantic.com/health/archive…
When long-haulers talk about their fatigue, they often hear “Oh I’m tired too”. But theirs is utterly different to the everyday version healthy people get. More severe. Very hard to push through (& costly if you try). Not cured by sleep. Multifaceted. 3/ https://t.co/yqZoRGtyxAtheatlantic.com/health/archive…

Fatigue is among the most common and most disabling of long COVID’s symptoms, and a signature of similar chronic illnesses such as myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS). But in these diseases, fatigue is so distinct from everyday weariness that most of the people I have talked with were unprepared for how severe, multifaceted, and persistent it can be. For a start, this fatigue isn’t really a single symptom; it has many faces. It can weigh the body down: Lisa Geiszler likens it to “wearing a lead exoskeleton on a planet with extremely high gravity, wh...
And though normal fatigue is temporary and amenable to agency—even after a marathon, you can will yourself into a shower, and you’ll feel better after sleeping—rest often fails to cure the fatigue of long COVID or ME/CFS. “I wake up fatigued,” Letícia Soares, who has long COVID, told me.
Read 13 tweets
Ed Yong is not here Profile picture
Apr 19, 2023
👋I’m back. And I wrote about the current wave of attempts to downplay long COVID—less outright denial & more "it’s real but no big deal".

Except: it very much is. It’s a substantial and ongoing crisis that still demands our attention. 1/
theatlantic.com/health/archive…
This piece addresses the gaping flaws in the most common downplaying arguments. It covers biomarkers, disability claims, the spectrum of severity, the oft-repeated “I don’t’ know anyone with long COVID” line, and more. 2/
theatlantic.com/health/archive…
A key point: The flaws in these arguments become clear if you actually talk to long-haulers (& clinicians with extensive experience in treating them). Their experiences are the ground truth against which all other data must be understood. 3/
theatlantic.com/health/archive…
Read 6 tweets
Ed Yong is not here Profile picture
Sep 30, 2022
🧵Some personal news: I’m taking a 6-month sabbatical, starting now. These past 3 years have been the most professionally meaningful of my life, but they’ve also deeply broken me. The pandemic isn’t over, but after a long time spent staring into the sun, I need to blink. 1/
I’ve talked openly about the mental health challenges of pandemic reporting—e.g. & traumastewardship.com/2022/02/ed-yon… I know stepping away is a huge privilege most people don’t have. Persistence matters, but it has limits, and I’ve long since reached mine. 2/
When I’ve interviewed healthcare workers & others about burnout, there are basically 3 roads they take.
1) Double down on duty and mission.
2) Find community.
3) Step away.
I’ve done the first for as long as I can. I’m now doing the third to focus on the second. 3/
Read 12 tweets
Ed Yong is not here Profile picture
Sep 29, 2022
🧵I want to share some thoughts about reporting on long COVID and other complex chronic illnesses. (e.g. below)
This is a thread about the ethos behind these pieces, and how I’ve approached interviewing, writing, and the rest of it. 1/
I still consider myself new to this kind of reporting & am learning as I go. This isn’t a finger-wagging lecture. I'm just sharing some stuff I've thought about a lot. I hope it will be helpful to other journalists who want to do this kind of work & inspire more to do so. 2/
And many (most?) of these ideas and principles also apply to other pieces I’ve written about people who’ve taken the brunt of the pandemic, including those grieving loved ones lost to COVID, immunocompromised folks, and burned-out healthcare workers. 3/
Read 32 tweets
Ed Yong is not here Profile picture
Sep 26, 2022
🚨I wrote about ME/CFS (chronic fatigue syndrome). The US has millions of people with it & maybe two dozen docs who specialize in it.

This medical crisis needs urgent attention, esp. now COVID has hugely increased the number of long-haulers. 1/
theatlantic.com/health/archive…
ME/CFS involves a panoply of debilitating symptoms that affect almost every organ system. People are intensely sick for years or decades. They spend much of that time getting stigmatized, dismissed, misdiagnosed. 2/ theatlantic.com/health/archive…
At the highest estimates, Americans with ME/CFS outnumber the populations of 15 individual states. But there aren’t enough ME/CFS specialists to fill a Major League baseball roster. Most patients never get a diagnosis, let alone any kind of care. 3/ theatlantic.com/health/archive…
Read 14 tweets

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