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Monika Dryburgh Profile picture
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4 Oct, 3 tweets, 7 min read
@FandomjunkieZee @bennessb Clinical depression, seronegative arthritis/#spondylarthropathy, food intolerances (although I needed help working out the specifics), #EDS, #POTS, #endometriosis, #ActuallyAutistic, #PyoG. Thankfully in the latter case I only had a STRONG HUNCH for days before dx was confirmed.
@FandomjunkieZee @bennessb #selfdx #socdx #AusHealth #HealthSystems #HealthSystemsCapital #MedExpertise #KnowledgeWork #healthwork #ExpertPatient #2ndShiftSick #autoimmune #autoimmunity #chronicillness #multisystemic #comorbidities #EDS #MUS
@FandomjunkieZee @bennessb @threadreaderapp unroll, danke schön! 😄

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More from @monika_dryburgh

Monika Dryburgh Profile picture
8 Oct
As I was musing to @BattenbrgBarbie recently, I suspect there are a bunch of overlaps in the social experience — along with some v important differences, esp around differential inflections along axes of power/oppression — in various experiences of being #NonNormativelyEmbodied:
e.g. (in no particular order & v incompletely): Fat, #ActuallyAutistic+prone to #SensoryOverload, Deaf, in/visibly #disabled, in #ChronicPain or experiencing #chronicillness-rel’d #fatigue, racialised, trans, v tall or vshort (even without being a little person), #hypermobile...
I was thinking about how many of the #hypermobility/#EDS-related specificities of providing competent & safe care to me (even when the EDS isn’t DIRECTLY contributing to the current clinical picture)...
Read 8 tweets
Monika Dryburgh Profile picture
8 Oct
Dear #NEISvoid/twitter, I am VINDICATED (&, uh, still hyper on steroids, FWIW). Awesome Sleep/RespDoc is of the educated &firm opinion (upon reviewing my hospital discharge summary, lung function test results...which the hospital still hadn’t passed on yet as of this morning? 🙄)
...that I have NOT suddenly & completely coincidentally managed to develop asthma for the first time in my life at the tender age of 39 (although he thinks it does sound like a bronchospasm cough, which is literally how I was describing it when it first started happening.
Nor do I seem to have any kind of lung problem, nor a recent past upper/lower resp tract infection). Although apparently he hadn’t received the results of either of the sputum culture tests from the hosp. I’m assuming they were boringly negative or I’d have heard by now, though.)
Read 18 tweets
Monika Dryburgh Profile picture
7 Oct
I’m not sure if there’s anything more [@steve_kambouris + @monika_dryburgh] than us spending an HOUR watching 01:32 (one minute and thirty-two seconds) of an audiovisual entertainment (online miniseries) that we are both genuinely really enjoying & are v engaged with. 😯😳🧐🥰😌
We keep having to stop to TALK ABOUT THINGS! 😆 📺We have to research diegetic & extradiegetic aspects of both text & paratext (& actual political history), check my interpretations of the narrative esp wrt actual historical events &/or particular characters...
... check my facial recognition & name-matching to chars (& often then detour even further to go investigate just how GOOD the casting & make-up/prosthetics & costuming & sheer physicality of the actors is in creating believable representations of the “characters”)...
Read 5 tweets
Monika Dryburgh Profile picture
7 Oct
Looking forward to hearing from John Byron in today’s HPS seminar on “Critical Friends: insights for science from the humanities”.
Noticed during last year’s metascience conference an emerging narrative of anxiety around critique of published results/reproducibility in science.
John found this anxiety narrative quite jarring, coming as he does from humanities work in e.g. Lit & cinema studies, where critique is central to methodology!
Read 26 tweets
Monika Dryburgh Profile picture
6 Oct
Too tired to comment personally atm, anyone want to add? (“Extreme male brain” theory, and lack of ToM & the idea that we ~~don’t have empathy~~ are the broad strokes.) @milton_damian @danialexis @AnnMemmott
@louiseallana Lol, timely, btw! 😁 P.S. for you, if you have the time/energy/inclination: autism & the double empathy problem (Damian Milton): , An Expert Discussion on Autism & Empathy (various, incl Melanie Yergeau): liebertpub.com/doi/10.1089/au…,
Representing difference as pathology: An Example from SBC’s The Science of Evil (Rachel Cohen-Rottenberg): autismandempathyblog.wordpress.com/representing-d…, Autism & empathy: what are the real links? (Fletcher-Watson & Bird): ora.ox.ac.uk/objects/uuid:0…
Read 6 tweets
Monika Dryburgh Profile picture
6 Oct
Thinking about the time, c15 years ago, in the middle of undergrad, when the genuinely-helpful psychologist I was seeing through the uni counselling service decided (entirely appropriately & ethically, imho) that I was officially Too Complex for her to competently help...
given the limitations of the situation: the limitations of her own training & expertise, the maximum of 6 counselling sessions available to us per semester, my worsening & multiplying complex physical health problems (very incompletely-diagnosed)...
the impact of recurrent bouts of anaemia as well as immunosuppressant side-effects on my constant fatigue, the interactions between my increasing disability & pain & concomitant sleep issues & my mental health, fatigue & pain levels...
Read 40 tweets

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