@KylenH @bennessb Yes, I think so. I don’t have the super-soft/delicate/stretchy skin of EDS classic type,, & although I do get atopic dermatitis it seems to be different to the irritation & peeling skin I get from tape. I also get a particular (&, I think, related) skin reaction to anything that
@KylenH @bennessb rubs, including my otherwise-awesome thumb splints. Alsoalso very prone to skin tags in high-friction areas, fwiw. I don’t seem to have full-on #MCAS on anything, but I do wonder if #MastCellsGoneWild could be implicated somehow,
@KylenH @bennessb esp given my recent experiences of simultaneous #multisystemic #autoimmune #chronicillness affecting GI system (#IBD: #crohns but also #GORD), skin (#PyoG), joints (#AnkSpond/#spondylarthropathy/ seronegative #arthritis) & prob aspects of the respiratory system
@KylenH @bennessb incl bronchi/bronchioles & nasal sinuses, AND urinary system (chronic irritable bladder in the absence of infection or obvious mechanical dysfunction beyond chronic pelvic floor muscle spasm).
@KylenH @bennessb All massively improved &/or completely resolved (incl, completely unexpectedly, the bladder & breathing & nasal congestion stuff) on high-dose #corticosterouds & #iimmunomodulator drug #biologic drug #infliximab which I started for the 1st time during my recent hospital stay.
@KylenH @bennessb I also have a past history of ocular involvement in my #autoimmune #Crohns disease, in the form of episcleritis. Basically, my body doesn’t like friction, is super-sensitive to all kind of irritation & is FANTASTIC at reacting to all kinds of innocuous stimuli w #inflammation.
@KylenH @bennessb Tl;dr: ...yes? Also, maybe #MastCellsGoneWild-related, but it’s just a semi-ignorant lay theory at this point. #MCAS #EDS #autoimmune #autoimmunity #multisystemic #chronicillness
@KylenH @bennessb @UntoNuggan, @jeshyr, @JoannaNoBanana, @jenbrea, @Lilysea, @Imani_Barbarin, @sithrenity, @danialexis, @BattenbrgBarbie, @Asher_Wolf, @H2OhTwist, @stickmancrips, @AnnaWhateley,@TheItchyZebra, @bennessb, @splodgenoodles, @LeafyQueerCrip,@PenelopeJaneMcM
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