When autistic people are overstimulated/overwhelmed for any reason, it’s very common for us to lose the ability to speak.
Many of us become completely physically incapable of it. For others, it’s possible to speak, but very difficult and distressing.
This often goes along with a shutdown, which is an “internal” meltdown. In those situations our motor control may be impacted too.
But sometimes, it just happens randomly. We might be okay emotionally and able to type or gesture, but still unable to speak.
Some autistic people never speak, some of us speak only in echolalia, some of us are semi-speaking, and some of us are usually able to speak in the ways NTs do.
There’s a very wide variety of speaking ability in autistic people, and it often changes in each person over time.
For those of us who can usually speak in a way that’s deemed “normal,” episodes where we lose speech can be confusing to people who aren’t familiar with the fact that autistic people’s speech is highly variable.
People might get frustrated with us for “ignoring them.”
When I had meltdowns and shutdowns as a kid, I’d lose the ability to speak and move.
So I’d sit immobile, unable to follow their instructions while they got increasingly angry with me for not complying.
They didn’t know that I was physically unable to answer or move.
I’ve had a few shutdowns since arriving at college, and my friends have had some too.
Because they’ve learned from me, they’ve gained the vocabulary to describe their experiences, and they’ve stopped forcing themselves to speak when it’s painful.
That makes me very happy.
We communicate using the “Emergency Chat” app on my phone (or a notes app), through gestures and signs, and through body language.
Abby and I want to start learning more ASL so that it’s easier to communicate when one of us is having a shutdown or can’t speak.
Basically, if nobody has ever told you this:
It’s okay to not speak.
You don’t have to force yourself to speak if it’s difficult or painful. There are other, equally effective ways to communicate.
And sometimes it’s nice to just exist in silence.
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In the study, autistics and neurotypicals were recruited to see if they would donate to a good cause that would make them lose money, or support a bad cause that would benefit them financially.
In one condition, the decisions were private. In another, the decisions were public.
In the public condition, both autistics and neurotypicals were more likely to donate to the good cause that made them lose money.
But in the private condition, neurotypicals were much more likely than autistics to support the bad cause that would earn them money.
One of the main ways that nonspeaking autistic people are denied agency, is through repeated and incessant demands to communicate.
I watched a documentary the other day called “The Limits Of My World” and there was one scene in particular that drove this point home.
The documentary is about a nonspeaking 21 year old autistic man named Brian, who lives in a caregiving facility.
One of his caregivers was helping him dry off after his shower, when she pointed to the mirror and said, “Who’s that? Brian, who is that? What’s your name?”
I couldn’t count how many times he was asked. And the irony was, she clearly knew his name.
Over time, her tone shifted from a light and playful “Brian, what’s your name?” to a demand: “Brian, tell me your name.”
When people say they’re against eugenics because (for example) altering autistic people’s genes might “accidentally get rid of special talents and skills”…
They aren’t actually anti-eugenics.
In fact, that argument is very much in line with the core ideas of eugenics.
When people say “Autism shouldn’t be eradicated because…” and then follow up that statement with things like:
- “Autistic people are intelligent”
- “Autistic people can be productive”
- “Autistic people have special talents”
- “Autistic people can be independent”…
They are doing two things:
1. Feeding into the idea that a disabled person’s only worth comes from how well they can be exploited economically
2. Erasing autistic people who don’t fit those criteria, and implying that it would be okay for *those* people not to exist.