The Autisticats - #StopTheShock Profile picture
Oct 14, 2020 8 tweets 2 min read Read on X
When autistic people are overstimulated/overwhelmed for any reason, it’s very common for us to lose the ability to speak.

Many of us become completely physically incapable of it. For others, it’s possible to speak, but very difficult and distressing.
This often goes along with a shutdown, which is an “internal” meltdown. In those situations our motor control may be impacted too.

But sometimes, it just happens randomly. We might be okay emotionally and able to type or gesture, but still unable to speak.
Some autistic people never speak, some of us speak only in echolalia, some of us are semi-speaking, and some of us are usually able to speak in the ways NTs do.

There’s a very wide variety of speaking ability in autistic people, and it often changes in each person over time.
For those of us who can usually speak in a way that’s deemed “normal,” episodes where we lose speech can be confusing to people who aren’t familiar with the fact that autistic people’s speech is highly variable.

People might get frustrated with us for “ignoring them.”
When I had meltdowns and shutdowns as a kid, I’d lose the ability to speak and move.

So I’d sit immobile, unable to follow their instructions while they got increasingly angry with me for not complying.

They didn’t know that I was physically unable to answer or move.
I’ve had a few shutdowns since arriving at college, and my friends have had some too.

Because they’ve learned from me, they’ve gained the vocabulary to describe their experiences, and they’ve stopped forcing themselves to speak when it’s painful.

That makes me very happy.
We communicate using the “Emergency Chat” app on my phone (or a notes app), through gestures and signs, and through body language.

Abby and I want to start learning more ASL so that it’s easier to communicate when one of us is having a shutdown or can’t speak.
Basically, if nobody has ever told you this:

It’s okay to not speak.

You don’t have to force yourself to speak if it’s difficult or painful. There are other, equally effective ways to communicate.

And sometimes it’s nice to just exist in silence.

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with The Autisticats - #StopTheShock

The Autisticats - #StopTheShock Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @autisticats

Oct 24, 2021
Last year, a study came out which revealed that autistic people are more likely than neurotypicals to follow our morals even when no-one is watching.

This is an article that @AutSciPerson wrote about the study and its implications:

neuroclastic.com/autistic-peopl…
In the study, autistics and neurotypicals were recruited to see if they would donate to a good cause that would make them lose money, or support a bad cause that would benefit them financially.

In one condition, the decisions were private. In another, the decisions were public.
In the public condition, both autistics and neurotypicals were more likely to donate to the good cause that made them lose money.

But in the private condition, neurotypicals were much more likely than autistics to support the bad cause that would earn them money.
Read 9 tweets
Oct 6, 2021
Today I discovered the name of a phenomenon I’ve been experiencing as long as I can remember:

Allodynia, a type of neuropathic pain where the skin is extremely sensitive to touch.

As it turns out, this kind of nerve pain and hypersensitivity is common in autistic people.
Here are some studies I read, which explain that lower C-fiber nerve density/denervation in some autistic people is a likely cause of allodynia.

hindawi.com/journals/np/20…

mdpi-res.com/d_attachment/j…
Notably, one of those studies is about the connections between autism and Ehlers-Danlos Syndrome (which I also have).

People with EDS often exhibit denervation of their C-fiber nerves, just like autistic people.

This can make it very hard to experience pleasant touch.
Read 9 tweets
Sep 23, 2021
Loneliness is a health issue that affects autistic people at a rate 4x higher than the general population.

It’s a serious problem, but I think many people don’t quite understand the effects of loneliness on the body and mind.

So, I’m going to explain.

huffingtonpost.co.uk/amp/entry/peop…
Humans need warm, loving contact with other humans in order to keep our nervous systems and bodies regulated.

We are fundamentally social creatures, and autism doesn’t change that.

What autism does often change, is the likelihood of being treated well by others.
The source of that problem is not autistic people.

It’s a problem created and perpetuated by a society that does not understand (and is not willing to care for) autistic people.

So in order to solve it, we have to change social attitudes and behaviors towards autistic people.
Read 10 tweets
Sep 16, 2021
When autistic people’s autonomy is stripped away from us, we’re more likely to be aggressive.

This is true of all human beings.

But when autistic people are not viewed as fully human, and people don’t recognize our autonomy, they can’t see why we lash out when it’s denied.
In the documentary “The Limits Of My World,” Brian (a 21 year old nonspeaking autistic man) lashes out at one of his caregivers.

They were at a center for adults with intellectual and developmental disabilities, doing crafts.

It was overstimulating.
There were many people talking all at once, including 3 people talking to Brian directly.

One caregiver had his hands on Brian’s shoulders, but would often reach down to grab Brian’s hands and force him to do things.

The other caregiver was sitting beside Brian.
Read 9 tweets
Sep 13, 2021
One of the main ways that nonspeaking autistic people are denied agency, is through repeated and incessant demands to communicate.

I watched a documentary the other day called “The Limits Of My World” and there was one scene in particular that drove this point home.
The documentary is about a nonspeaking 21 year old autistic man named Brian, who lives in a caregiving facility.

One of his caregivers was helping him dry off after his shower, when she pointed to the mirror and said, “Who’s that? Brian, who is that? What’s your name?”
I couldn’t count how many times he was asked. And the irony was, she clearly knew his name.

Over time, her tone shifted from a light and playful “Brian, what’s your name?” to a demand: “Brian, tell me your name.”

He couldn’t answer because he couldn’t speak.
Read 9 tweets
Sep 9, 2021
When people say they’re against eugenics because (for example) altering autistic people’s genes might “accidentally get rid of special talents and skills”…

They aren’t actually anti-eugenics.

In fact, that argument is very much in line with the core ideas of eugenics.
When people say “Autism shouldn’t be eradicated because…” and then follow up that statement with things like:

- “Autistic people are intelligent”
- “Autistic people can be productive”
- “Autistic people have special talents”
- “Autistic people can be independent”…
They are doing two things:

1. Feeding into the idea that a disabled person’s only worth comes from how well they can be exploited economically

2. Erasing autistic people who don’t fit those criteria, and implying that it would be okay for *those* people not to exist.
Read 10 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us!

:(