I absolutely dislike it when men in suits say that the 'sector' (often meaning mouthy disabled women who do public appearances) is 'emotional'.

It is such a gendered and ridiculous concept. I am autistic. So is @MithenZoe & many others. One step removed from a Vulcan. #RoboNDIS
2/ In addition, we have decades of experience as advocates, parents, disabled people, workers & volunteers in the sector. Saying that we are 'emotional' about something that we actually know more than they do about is - offensive.

We base our opinion on facts & lived experience.
3/ When we talk about facts, we are talking about not just potentially skewed statistics but decades of academic research, the testimony of hundreds and thousands of disabled people & their families as well as anecdotal evidence. Of course we are angry about this; that is usual.
4/ As someone who has spent decades recording the deaths through institutional neglect and abuse of disabled people, I am furious that I am still doing this, at my advanced age. I should be freaking gardening and doing whatever the bureaucrats do on the weekends. That's normal.
5/ I can guarantee, though, that when it comes to THIS, dealing with disability policy, my emotions do not come into it, except to fuel my ability to work. And that is endless because rage is fuel. You are fuelling hundreds & thousands of Australians.

Thanks. It's constructive.

• • •

Missing some Tweet in this thread? You can try to force a refresh

Keep Current with Sam Connor

Sam Connor Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!


Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @criprights

4 May
I am very interested in some of the payments that the NDIA has apparently made to contractors.

Contractors you wouldn't expect. Nous Group, for an innocuously named 'digital strategy' of almost a million buckaroos. #RoboNDIS
2/ Nous Group Pty Ltd Consultancy Services Relating to Digital Strategy 1/07/2020 31/03/2021 $ 282,147.56 $ 772,200.00

Tim Orton. They have been running around WA doing this - and it is kind of interesting that they are also working for the NDIA, yes?

3/ Digital strategies up the wahoo, @mariehjohnson. nousgroup.com/case-studies/m…

But here Tom Leeming, a former public servant we knew reasonably well in WA, spells out the reform agenda that they have been desperately trying to conceal with too many words.

Read 15 tweets
4 May
Martin Hoffman asserts that WHODAS has always been used by the NDIA (correct) & that the question about our sex lives has always been used.

I have been in the scheme since its inception & I have never once, unless first raising it, had a planner ask about my sex life. #RoboNDIS
2/ Mr Hoffman is getting emotional during this hearing. I feel bad for him. He says that the decision is reviewable and appealable. He will not answer the question about the actual independent assessment being appealable.
3/ If a decision is made by the NDIA and is appealed at AAT, Hoffman is asked, would the input by the IA be considered? Yes, he says, because accuracy of information is always considered.

But the fact remains that the legislation says that we can appeal a decision made by NDIA.
Read 6 tweets
4 May
Senator @HollieHughes is talking about families who put in the investment and getting gains. Recognising that this is a big tension between the Agency, autistic people and their representative organisations and parents - ABA.

There is little discussion about this.
2/ It's an uncomfortable tension. Most rights based disability organisations say that ABA is anywhere from abusive to undesirable and parents of autistic children say that it works, despite the massive costs. Most parents of autistic kids have mortgaged - or no - houses.
3/ As a parent carer as well as an autistic woman, I hold my own opinions, as do our peak autism organisations for autistic people. But that does not change the fact that we need to have this discussion - there is no way an overall reduction in funding will have good outcomes.
Read 9 tweets
3 May
This is - breathtaking.

In comments likely to rile some advocates, Reynolds pointed to data showing that since 2017 there had been a “significant drop” in people classified in the scheme as “high functioning” and a “significant increase” in those who were “low functioning”.
2/ “If you think about the implications of that, it’s quite alarming,” Reynolds said. “Is the NDIS actually making people less functional over time? So those are one of the many questions we need to have a look at … to work out what is happening and how it becomes sustainable.”
3/ I mean, there are three likely explanations, which the minister appears to have overlooked.

Outside of the fact that I am not sure who collects data of that description and how it’s collected.

One is that people aren’t getting into the scheme unless wildly disabled.
Read 5 tweets
3 May
Good grief.

Minister Reynolds says that people in Halls Creek should have the same funding packages as people in Canberra.

Let's take a deep breath, people. Let's look at that.

This is Halls Creek. We all know Canberra, right?

2/ This is what Halls Creek looks like.
A population of 3,269. Versus, of course, 395,790 in Canberra. In 2016, Aboriginal and/or Torres Strait Islander people made up 67.6% of the population. Versus 0.02% in Canberra.

You know how much Aboriginal people trust wadjela services?
3/ I'm talking to Far North Community Services right now. They don't actually know what delivery is done in Halls Creek, cos they're Broome. Let me look, shall I?

I can find - two that deliver in Halls Creek.

This org has an annual income of $615K. acnc.gov.au/charity/7ba38d…
Read 25 tweets
3 May
Oh my god.

Minister Linda Reynolds just said that she has been pretty clear that there is a need for some form of functional assessment and that it is 'in the legislation'.
Senator Steele-John is saying she is pre empting the outcome on the outcome of the model. #RoboNDIS
2/ She is saying that 'we must have some form of functional independent assessments'. And that she is committed to that.

As I said, the Minister has picked a side. And it is not ours.
3/ She is saying that this is about us having fair, transparent, consistent decisions made and getting fairer outcomes.

There is a long, long silence, and Senator Steele John says very slowly, the entire disability community says this will not work.
Read 4 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!

Follow Us on Twitter!