#MedicalTwitter, this is not OK.
Please look at this story, & the responses, to see the uphill struggle we have to talk with compassion about CPR to people who are sick, frightened & not accompanied by their loved ones during this time of covid.
Some comments: 1/
Firstly, I have been the doctor whose words were relayed by a v sick patient to a relative, & what the relative heard was not what I said. But it WAS what the patient/family understood from what I said, so I was responsible for that miscommunication.
Communication matters. 2/
CPR isn't really 'treatment.' It's a bridge to treatment in an emergency. Sometimes it works. But it's not like on TV.
Most people don't know that, so how we explain it really matters.
3/
When we are communicating about CPR, there are different possible scenarios. The public isn't always clear about them, so we need to be very clear indeed.
CPR is only ever going to work when the heart stops first, & when the patient's other organs are relatively healthy. 4/
It isn't ageist to talk about lower survival in older people, it's just the truth.
Just like it's the truth that people of any age with severe & already life-limiting illness are unlikely to benefit.
So every patient always requires individual, personalised assessment. 5/
After assessment, we have a duty to protect patients from harm. For some, we escalate medical interventions to protect (if we can) from dying.
For those who cannot survive, our duty is to protect from harmful, unhelpful treatments.
This needs clear, compassionate communication.
6
So how do we communicate with clarity & kindness?
By being clear in our own mind first, & walking patient/family through the assessment.
CPR decisions fall into three scenarios.
Here's a summary slide - we'll consider each in turn. 7/
Scenario 1: person in full health (includes people living with stable physical disability, learning disability, mental health problems) whose heart stops unexpectedly.
Survival chance 10-20% if CPR by trained bystander starts immediately. 8/
Scenario 1: CPR might succeed. The consent question is 'Would you accept CPR if it was medically necessary?' They have a right to refuse: then a DNACPR statement is needed to respect their decision. They may already have an ADRT refusing CPR.
It's their right to say no.
9/
Scenario 2: The person's organs are already struggling, so if the heart stops that would be the final blow: CPR would not be medically possible.
Futile CPR should not be started, & this needs to be communicated with gentle clarity: the patient has a right to know. 10/
Scenario 3: the person is dying. Instead of their heart stopping first, it stops last at the end of the gradual process of dying. CPR will not reverse this. It is as inappropriate as surgery.
This is not a 'consent' conversation. Instead... 11/
A DNACPR decision made on the grounds of medical futility requires a tender conversation to explain that death is approaching (months, days, hours) & that we will not mistake death for a cardiac arrest. We will protect from CPR via DNACPR statement. 12/
The doctor in the original tweet did not communicate well. It's not clear whether she was too tired, too inexperienced, too busy, not sufficiently trained: it's unlikely she was simply unkind. Whatever happened, that is a system failure. She should not shoulder all the blame.
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In the end, it's all about communication.
Being clear in your mind about the place of CPR.
Being clear about consent to treat: it's never consent NOT to treat.
Being clear by acquiring, practising, reviewing communication skills.
Being clear about what we have communicated... 14/
At the end of the conversation, asking the person to tell us how they will explain to their loved ones is a good way to help them prepare for that task and to check there are no misunderstandings.
Patients' misunderstanding of medical info is not their fault, but ours.
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Better public understanding of what CPR is, its limitations, & people's rights to say no but not to demand futile treatments would make these conversations less distressing for our patients.
This could be taught whenever people are taught CPR, including in schools.
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It's time for a national information campaign using TV dramas, media articles, social media campaigns, etc. This should be government led as sought by @katemasters67 & @ShaunLintern.
The public has a right to better information to support such difficult medical discussions.
17/17
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Additional comments on this thoughtful conversation.🧵 1. Despatch of a paramedic crew doesn't always come from 999 call. 111 calls can be escalated/trigger an emergency response.
Caller may want clinician advice, fully aware of anticipated dying & DNACPR decision. 1/
2. Calls to DN or GP numbers out of hours may be met with recorded advice to call 111 or 999. Callers seeking advice about EoL care assume this is their next reasonable step, & place their call.
2/
3. Because lives are saved by early #CPR when given appropriately, call handlers' opening triage questions screen for level of consciousness & whether the patient is breathing. This automatically bypasses the back-story in EoL call, perplexing callers.
3/
People turn away, cross the road, avoid us in shops or on buses.
We have no energy to reach out, but we really appreciate you making that effort to make contact. We might not reply. But please, stay alongside us.
Please don't think you need to cheer us up, or to 'make sense' of their death. You can't.
Instead, just be with us in our sorrow. That's how we feel right now, but company sometimes helps a bit. Try 'I'm sorry you're so sad' if you need to say something.
#EoL care staff need to talk about restlessness prior to death, including it in preparation. Although it's not common, it's highly distressing if companions don't understand it.
Here's an edit of my recent public info post on Facebook, where I don't use medical language. 1/
'Terminal agitation' isn't a diagnosis, but it describes muddled thinking with unusual behaviours that occasionally happens in a person close to death.
Understanding what might be happening helps us to respond calmly. *
2/
1. Towards death, the brain is losing consciousness. Most people are deeply unconscious & peaceful, but a few spend time more alert (again, usually peaceful). Some of these intermittently experience a kind of neither-awake-nor-asleep state.
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@DeborahAlsina This is frustrating isn't it? Your mum deserves to have a plan in place for foreseeable events that she's helped to shape & respects her choices.
A few ideas and comments: 1. Advance care planning (#ACP) is the process that considers current & future care needs. Whose job?
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@DeborahAlsina#ACP needs teamwork.
*GP is usually the coordinator unless someone else knows a particular person better as their patient.
*Plan belongs to & respects the wishes of the person.
*If the person lacks capacity, a plan using Best Interests decision-making can still be made.
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@DeborahAlsina#ACP conversations might include
- person's best hopes/worst dreads. We want a plan to steer us as close as poss to their hopes & as far as poss from their dreads. This is a useful conversation for all of us to have with loved ones.
- decisions to decline specific treatments.
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A seasonal reminder that Christmas isn't always 'merry.'
If this season of jollity and connection jars for you, snags at your raw edges or catches your breath with loss, I'm sorry.
You're not alone. In fact, you're almost certainly near other people pretending to feel jolly. 1/
I'm sorry the winter festivities leave little room for the things that matter most to some of us: memories of happier times, companionship that doesn't insist on good cheer, space for the names of the people or relationships we are yearning for.
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In our compassionate community here, there are kind souls who help others hold their pain for a while. Thank you to all those loving hearts.
During the festive season, your thoughtful presence is especially appreciated.
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@SachaLG@kesleeman Palliative care is about managing symptoms of an illness so that the person can live 'well enough.'
Obviously, curing their illness is the surest route to wellness, so more often than not 'palliation' happens because cure can't.
But not always.
For example:
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@SachaLG@kesleeman Specialists in palliative care who work in cancer centres regularly advise about minimising side effects of cancer treatment, including for patients who are likely to be cured by their treatment.
Palliation of symptoms reduces the chances they'll miss treatments.
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@SachaLG@kesleeman My work prior to retirement included regular involvement in the post-op care of people on surgical wards for curative treatment.
Minimising their post-op symptoms reduced delays in moving on to chemo or radiotherapy, increasing their chance of cure.
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