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Dr Keith Geraghty Profile picture
@keithgeraghty
Aug 31, 2021 • 8 tweets • 5 min read • Read on X
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The @RCPhysicians @bodgoddard opposition to @NICEComms ME/CFS treatment guidelines is comes from physicians who refuse to accept GET being removed. This slideshow reveals what physicians running NHS CBT-GET treatments really think about ME/CFS. twitdoc.com/upload/maxwhd/…
1. they view ME/CFS as a functional somatic syndrome, not a biological illness. twitdoc.com/upload/maxwhd/… ImageImage
2. they link Functional Syndromes to Somatisation - often without any evidence, I've looking at this - ie patient accused of overly focusing on bodily symptoms (as a psychological problem) linked to psychological factors (causes/triggers) Image
3. Actual disease is dismissed and reframed in terms of hpochondriasis - illness seeking behaviour and false belief of serious illness/disease. Image
4. Past history of 'hysteria' often associated with illnesses impacting females, and malingering - often thrown into the debate on functional disorders like CFS/ME - by the very physicians stopping @NICEComms produce new guidelines Image
The cause of ME/CFS according to Dr Turner-Stokes , @bodgoddard childhood issues, emotional issues, anxiety, drs over investigating, families blamed for reinforcement, lack of social support. - all total unscientific narrative I have shown to be unsupported. ImageImage
The organic side of ME-CFS - the biology - well Dr Turner-Stokes its an "organic nubbin" only ie small to nothing!!! thats whats some so-called experts in this field are advising @NICEComms Image
Warning this slide may upset: please do read this one @RCPhysicians @bodgoddard Are physicains claiming ME/CFS patients gain from having ME/CFS? I think this slide should form the basis of some complaint on this @NICEComms. "unwanted sexual attentions" really? Image

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More from @keithgeraghty

Dr Keith Geraghty Profile picture
Jan 27
Article Guardian 'The mind/body revolution:' covers FND as the case example - Simon Wessely says its "unbelievably rare" - well his colleagues in UK psychiatry have actually pushed for it to be common based on their view that all medically unexplained symptoms in neurology departments may be called FND. theguardian.com/society/2025/j…
2. it will not be lost on all my followers that Prof Simon Wessely is a psychiatrist who pushed hard in the 1990s-2000s that illnesses such as ME/CFS and Fibromyalgia had no biomedical basis - essentially he and colleagues pushed a narrative of a biopsychosocial model without biology - and to have him be the commentator on the mind body revolution is ironic. If we look at depression research we see strides to show inflammation as a possible cause, changes in biochemistry following environmental factors, and genetics - thats true bio-psycho-social. But the same model has not been applied to ME/CFS and most likely is not being applied to FND.
3. You may notice the lack of mention in the Wessely narrative of viruses, or bacteria, or any pathogen as a possible trigger for any chronic illness, taking a healthy human into ME/CFS or other - the entire focus of germ theory medicine from 1800 to 1999 wiped away by a new view of "...emotional distress, environmental challenges, childhood trauma or “even being sedentary" as the important risk factors. We see pendulum swing, not a true integrative model, but a psycho-social swing, and whilst all factors are important, the key question is which are most salient to understanding cause and working out treatments.
Read 6 tweets
Dr Keith Geraghty Profile picture
Oct 27, 2024
I think this really shows a clear and dangerous dogma in health psychology, that the 4 conditions focused on in the trial, IBS, Fatigue (ME/CFS), Pain, Fibromyalgia, are not "explained" & this CBT-based training does not explain all medically unexplained symptoms conditions.
The authors challenge the legitimacy of the term medically unexplained symptoms, but in paper they promote the notion of an even more nebulous disorder concept, Somatic Symptom Disorder or Bodily Distress Disorder, and assert that 2/3rds of participants meet the criteria for SSD.
In the trial, the patients with so-called MUS are not clearly defined, we have no data on complaints they have, MUS is very loosely defined, the inclusion criteria is difficult to understand, and high MUS score patients are excluded as they have too much MUS!
Read 13 tweets
Dr Keith Geraghty Profile picture
Oct 25, 2024
@CGATist Prof Ponting is right to warn new researchers that ME research will not support careers, because it is almost impossible to stay focused on it long-term without funding. It is almost impossible to continue focusing on ME, so researchers move on.
I would like to raise the issue that UK ME charities tend to prioritise biomedical *lab research, meaning medico-health sciences research, epidemiology & the types of research myself and other health reserachers do, and want to do, is now severely restricted. So how to cotinue?
I wrote a letter titled "The Funding Gap" in ME to the 3 major ME charities in the UK. @MerukCEO @MEAssociation @actionformeI have recommended they collaborate to promote fellowships, PhD studentships, and long-term funding to keep people like me & others, focusing effort on ME.
Read 7 tweets
Dr Keith Geraghty Profile picture
Jan 26, 2024
Acu Seeds & the Power of Belief: I spent an hour listening to a podcast with the @BBCDragonsDen contestant/director of Acu Seeds about her healing journey with ME/CFS. In her own words she says she was diagnosed with Jan 2019, made a 60% recovery by June, and 100% by Feb 2020. Image
A few important points: 1. data shows that younger people who suffer post-viral fatigue, eg post EBV/Mono, have a 90% chance of recovery within 1 year, it is only around 10% that go on to have symptoms post 12 months.
2. Ascribing recovery to any one factor, is fraught with bias.
3. I celebrate this person getting their health back.
4. Belief is a powerful emotion. She says she saw a chinese herbalist who put her on 60 different herbs and treatments (I assume this is wordplay & not factual in numbers terms).
5. Ear seeds appear to have played no part imo
Read 4 tweets
Dr Keith Geraghty Profile picture
Dec 17, 2023
Just started listening to a couple of talks by the COFFI group, Collab Fatigue Following Infection - intro by director about choosing to get well after Long-Covid set the exoected psycho-behavioural control over illness tone, so far! coffi-collaborative.com/post/live-semi…
Watching these videos does make me feel a bit like a party pooper - for instance, I'd say to this speaker we "feel' tired after activity, we also "feel" tired after flu, whats the difference, explain the biology to me? Image
Each speaker deserves to be heard and with respect, but their ideas and models don't deserve respect, especially when outdated, here we have the Treat Response - HPA axis kick in - Fear-Avoidance Behav Model that is crude, it in no way explains ME or LongCovid - its small minded. Image
Read 9 tweets
Dr Keith Geraghty Profile picture
Oct 12, 2023
I want to share some feedback of trying to continue ME/CFS research: I am struggling to continue in ME/CFS work due lack of funding despite effort & this is a challenge I do not know how to fix on my own. So, I am sharing my experience with all ME advocates/charities/supporters.
- I have had the most amazing support over the past few years from the ME community, esp via crowdfunding drives, from charities and private donations, however it is a real struggle to keep going without consistent funding, and I have shared this issue with UK charities this year
- I have had to halt my ME/CFS work, until I find a way to fund projects. I have published many scientific papers on ME/CFS, but this year I have struggled to secure long-term funding support. I shall share a bit more on this. Applying for grants can take months of work.....
Read 7 tweets

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