Okay this morning I just found out about an Irish Autism “advocate” (using that term very loosely here), went on the Auti$m Speaks Podcast.

I have one question;

Why?

I mean, for starters, they don’t even (officially anyway) operate in Ireland.

[thread]
Autism Speaks are a group I’ve never worked with, and never will work with. I don’t care how much they claim to have changed, Autism Speaks have done more damage to Autistic People than any other organisation ever has.
You painted Autistic People as a threat to humanity, and for a long time you portrayed us as an unspeakable horror that destroys families and akin to AIDS and Cancer.

You can’t fix that with a PR makeover.
Despite the new exterior, under the surface they are still the same sickening, horrifying organisation they have always been.
So this brings me back to my main point;
Why on this earth is an Irish Autism advocate going on their podcast?!?!
Especially as I remember this person actually wrote a song about Autism Speaks and how terrible they were. Actually I’m going to go and see if I can find the song, brb

I’ll continue this thread in a little while
Okay the video appears to have been made private.

I now have lots more questions.

This Advocate has been very vocal in their criticism of Autism Speaks in the past.

This criticism is now seemingly being wiped out.

Something smells a bit fishy here.
Why would someone who has a long history of criticising Autism Speaks suddenly want to be on their podcast, and also remove anything critical they’ve said of the organisation?
I’ll be honest I’m not even sure where I’m going with this, I’m just thinking out loud and I really want to work out what the hell is going on.
Is Autism Speaks now targeting Advocates and trying to “clean up” their image by enticing advocates to remove any criticism they have made in the past? And if they are doing this, what are they offering?
Honestly I’m struggling to work out why someone who was so vocal in their opposition to this group has suddenly decided to work with them. I’m honestly confused
Okay the video appears to have been removed, but I have been able to find a screenshot of the lyrics.

And I know the person’s name is in there but if they want to be a spokesperson for Autism Speaks I don’t see the point in hiding it. Image
I mean, those lyrics are pretty strong, so why has this person did a full 180 and decided to partner up with A$?
Here’s the screenshots I meant to attach at the start of the thread but forgot to.

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More from @RyanHendry94

14 Oct
This is what one school calls a “calming room”

That’s not a calming room.

That looks more like a padded cell to me.

bbc.co.uk/news/uk-588856…

I want to talk a little about how “quiet rooms” have turned into de-facto isolation units within schools. [thread] Image
These rooms are often sold by schools as rooms where a pupil can go, in order to destress and unwind if they are in a stressful situation or find themselves becoming distressed. It conjures a picture of calm lighting and warm colours.

That is very rarely the case.
Most often, these rooms are effectively isolation units. They often have no other use than to as a place to put “disruptive” pupils, and many kids can be put in there for hours on end.
Read 16 tweets
12 Oct
Actually I want to talk about something positive.

Just going to do a short thread here, talking about some of the good experiences I’ve had, during my time of being an Autistic Advocate.

I’ll kick off with this. Meeting Steve Silberman, which was a huge, huge honour. Image
This was at the 2019 @AsIAmIreland conference, where I was also a speaker. I also had the pleasure of meeting @NaturalistDara (and his mum!), and getting to speak to him about his book, which I’m delighted to see has went on to be a huge hit! Image
I also met the very tall @LifeOfIrwin who made me look even smaller than I usually am. Image
Read 17 tweets
29 Sep
I want to talk today about “mate crime”, a specific form of disability hate crime.

I want to speak about it from the perspective as a victim of it, as I was a victim of it.

However, I only recognised that I was a victim of it very recently.
To set out some context, the events I’m about to described when I was between the ages of 16-18, and was still very much in the position of having no friends, so I was especially vulnerable to it.
To be honest I’ve tried to write this a few times now but I’ve stopped because I’m sort of ashamed but I figure I’ve nothing to be ashamed of.
Read 44 tweets
27 Sep
Okay this caught my attention today.

Question was asked by @GildernewColm , about whether the Department of Health in NI had any role in the Spectrum10K Study.

The answer has rather worried me.

#StopSpectrum10K #BoycottSpectrum10K @BoycottSpect10k Picture of a question asked...
Yes I accept the study has been paused, but the answer from the Department of Health has worried me.

Why the hell are they encouraging participation in this?! (Yes I know it says “should individuals wish to do so”)
I’m extremely, extremely concerned that the department of Health is getting involved in this. IMO, The Department of Health should have absolutely nothing to do with Spectrum 10K, and it’s things like this that make me worry.
Read 6 tweets
27 Sep
Hassaan’s thread is a good coverage of what driving can be like for an Autistic Person, and I’d just like to add on my perspective, this time from the ADHD angle. [thread]
Weirdly, I find that my Autism doesn’t have as much an effect on my driving as my ADHD does. Allow me to explain.
My license, for example. It is an Automatic license, as I found doing my driving test in a manual to be an absolute disaster.
Read 11 tweets
26 Sep
I know the Autism and Chicken Nuggets connection is a bit of a meme at this point, but it’s actually a pretty accurate meme, and I’ll quickly explain why.
It’s simple really; Consistency.

I know what I’m getting. 20 Nuggets from McDonalds will be the same, regardless of if I get them from the McDonalds in Carrickfergus, or the McDonalds in Singapore.
The texture will be consistent, the taste is consistent, the visuals are consistent.

Us Autistic People, we like consistency. Consistency is good.
Read 5 tweets

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