Rachel Thomas Profile picture
Nov 13, 2021 7 tweets 4 min read Read on X
"Who benefits from data sharing in Africa? What barriers exist in the data sharing ecosystem, and for whom? If much of the data sharing practice is shaped by the Global North, how can we ensure that the narrative for Africa is controlled by Africans?" 1/

arxiv.org/abs/2103.01168 Narratives and Counternarratives on Data Sharing in Africa R
Stakeholders in the African data sharing ecosystem. Those at the top of the iceberg hold significant power & leverage in guiding data sharing practices & policy compared to those in the hidden part of the iceberg. More powerful stakeholders wield disproportionate power. 2/ picture of iceberg. From top: (above water) government bodie
Dominant narratives around data sharing in Africa often focus on lack, insufficiency, deficit.

This framing minimizes the strength, agency, and scientific & cultural contributions of communities within the continent, and overlooks community norms, values, & traditions. 3/ a lack of knowledge about the value of data and training, as
Power asymmetries are common, resulting in imbalanced authorship & uneven bargaining.

Being on the ground in the field has the largest effect on data, but the data work of fieldworkers is framed as menial labor performed by easily replaceable & interchangeable individuals. 4/ Examining data production and consumption process in the con
A common threat is parachute-research, in which non-African researchers benefit from data sharing & open data and publish scientific work using African generated data available through open access initiatives – all while ignoring contributions of African communities & scholars 5/ The authors found that African researchers are significantly
Contexts are crucial to understanding data fully; data sharing practices that discard contexts risk becoming irrelevant & potentially harmful to local communities. We should shift into thinking in terms of *data settings* instead of datasets. 6/ 5.3 Contexts and local knowledge Contexts are a crucial elem
Above quotes are from "Narratives and Counternarratives on Data Sharing in Africa" by @red_abebe @arulebak @Abebab @sendgoodcheers @Geobaido @SekouLRemy Swathi Sadagopan

I recommend reading the full paper: arxiv.org/abs/2103.01168 7/ Narratives and Counternarratives on Data Sharing in Africa R

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More from @math_rachel

Nov 12
The human immune system is impressive, but so are the mechanisms pathogens use to evade it. In my new post, I cover 5 surprising and ingenious ways that viruses & bacteria can subvert our defenses. 1/ Image
Our cells contain microscopic motor proteins that transport cargo along microtubules. The virus (HSV-1) that is increasingly being linked to Alzheimer's Disease uses our motor proteins to transport its viral DNA to the nucleus, so that it can start replicating faster. 2/
T cells are a crucial part of the immune system. A single-celled organism (T. cruzi, cause of Chagas disease) blocks the signal which coordinates T cell response. With no T cell response to it, T. cruzi can survive 10-30 years in a person, before wreaking havoc or death. 3/ Image
Read 9 tweets
Oct 28
My daughter is constantly creating– her passions include making art, writing fiction, coding interactive games, and composing music. Some might say my husband & I are terrible parents… because she does all these things on screens 1/ Image of colored boxes.  Text: In defense of screen time.  Pundits say my husband and I are parenting wrong.  Rachel Thomas. Oct 29, 2024
I am concerned by how these false interlocking points are being repeated by politicians & pundits: that screentime is very harmful for children, that it is essential for kids to attend in-person school every day (even when sick), and that workers must return to the office. 2/ Collection of headlines: - Got a cold, runny nose, the sniffles?  No worries! Come to school, LAUSD says - Cough? Sore throat?  More schools suggest mildly sick kids attend anyway - Parents told to send sniffly children to school in government crackdown on sick days - Sickness-related school absences to be targeted under government plan
Overemphasizing in-person school attendance overlooks the many kids whose needs aren’t met by in-person school. It also overlooks the many online & screen-based options opportunities to build skills, express creativity, and form friendships. 3/

fast.ai/posts/2024-10-…
Read 8 tweets
Aug 12
There is much confusion about the "hygiene hypothesis" (what kind of microbes are beneficial vs. harmful?)-- a clearer refinement of it is the framing of "old friends" vs. "crowd infections"

Our immune systems evolved in a different world, without 100,000 flights per day 1/ Image
Some people compare the immune system to a muscle that gets stronger with use. Yet some infections leave lasting harm. Viruses are increasingly linked with multiple sclerosis, Alzheimer's, type 1 diabetes, cancer, & more...

My new post: 2/rachel.fast.ai/posts/2024-08-…
Allergies are a misfiring of immune system– when it attacks harmless environmental substances, e.g. pollen or dust. Autoimmunity is a different type of immune misfiring– when it attacks our own cells. Both are on the rise.

All the diseases in below chart are autoimmune. 3/ Image
Read 7 tweets
May 16, 2023
Friends with no previous interest in AI ethics have been asking me about it recently, so I want to share several underlying concepts about AI & power that are important to understand. 🧵 1/
AI and Power: The Ethical Challenges of Automation, Centralization, & Scale

Based on 20-min talk:

Blog post version: rachel.fast.ai/posts/2023-05-…
2/
In Australia, automation was used to scale putting poor people into debt (often illegally). The govt went from creating 20,000 new debts PER YEAR to creating 20,000 new debts PER WEEK, many of them bogus, but hard for people to appeal. 3/
Read 10 tweets
Mar 21, 2023
Viruses: The Silent Triggers of Autoimmune & Neurodegenerative Diseases (how a simple cold can lead to life-changing disease) 1/

My new post: rachel.fast.ai/posts/2023-03-…
Rheumatoid arthritis, Crohn's disease, Multiple sclerosis, Type 1 Diabetes, Lupus, Hashimoto's, & Psoriasis impact a range of body systems, but all are autoimmune diseases.

Developing a lifelong autoimmune disease is often first triggered by an infection. 2/
Medicine is very siloed, and autoimmune diseases have often been treated in separate silos, based on which body system they impact, limiting our broader understanding of common threads. 3/
Read 8 tweets
Mar 6, 2023
Even common viruses can have long-reaching, surprising, & devastating consequences. Fortunately, there are simple steps we can take to reduce transmission. 1/

My new post: rachel.fast.ai/posts/2023-03-…
The idea that a common childhood virus can quietly hang out in your nervous system, reactivate decades later to cause shingles, and then months AFTER shingles blisters clear up cause blood clots & strokes is mind-boggling to me 2/

theconversation.com/chickenpox-and…
VZV (chickenpox virus) is not just linked to strokes, but also linked to multiple sclerosis or vascular dementia (my note: possibly through reactivating other viruses).

Numerous common viruses increase risk of Alzheimer's or Dementia. 3/ cell.com/neuron/fulltex…
Read 8 tweets

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