Dr Keith Geraghty Profile picture
Nov 26, 2021 14 tweets 6 min read Read on X
I've just watched the below talk by Prof Clarke and his colleagues at IAPT and I have a concern with the research he cites as a good example of IAPTs ability to treat Long-Term Health Conditions LTCs. I shall take you through some observations - may be something @CBTWatch look at
1st the cited study being used in the video for the economic benefits of IAPT treatment of LTCs comes from an IAPT commissioned study of their own early introduction of CBT providers eg Thames Valley. Prof Clarke is a co-author of the paper. journals.sagepub.com/doi/abs/10.117…
2nd I noted that whilst this is said to be a study of LTC treatment, its actually a study of patients with depression and anxiety - clear - who also happen to have LTCs. Essentially whilst this is meant to be a study of patients with CFS, pain, post-cancer fatigue, its not.
3rd can you follow these numbers - we start off with around 1000 patients, cohort 1 is the study group (early treatment group for LTCs) cohort 2 is the control group (late followers studied when no treatment wait list) the numbers jump all around - we end up 85 get high intensity
4th the expressed Goal was to show CBT is a good treatment for LTCs, gets people back to work and reduces spending on medical care. BUT as far as I can see this is far from a solid study - its so all over the place I find it hard to keep reading. People dropped, verbal consents
..Prof Clarke's study actually states that almost half of his 1000 patients followed in IAPT treatment DID not know their Employment status! really? -- can we trust this paper? In the previous paragraph they excluded people over 65, now a few more over 65 excluded too, who?
its a hard study to follow - it seems the control group, who are just waiting are having improvements in health care utilisation ie they are using less, but they are getting nothing! nice expectancy example here and impacts treatment group too.
make of this what you will - everyone is improving from the get go! the treated who can get as little as 1 session and the controls who havent even started treatment ! Head shake....why are the controls using less than treated patients at start point ummm - head scratch
ie less health care utilisation scores - even before they start treatment ! I mean this will be a slide I use many times in many upcoming papers. Hawthorn effect, treatment expectancy - call it what you will.
Prof Clarke and colleagues argue that IAPT delivers a £360 cost saving per patient treated with LTCs in 1st 3 months, this is based on reduced Inpatient costs. But no info is given on these. AnE or outpatient little savings. I suspect some issues around whats actually going on..
Continued: IAPT want us to trust their treatment figures & they claim they are cost effective yet in their published study of "early 1st providers of IAPT care for Long-Term Conditions" many patients' data on what treatment they got goes missing/isn't collected - why?
...how do we start off with 1,096 patient sample - we have data on 934 pre-treatment, then we only know 'what type of treatment delivery' eg phone, face-to-face for 447 patients? does IAPT not know what it offered these patients? Also only 85 end up getting high intensity CBT!
28 patients received an "email" from IAPT and that was counted as "treatment" ! in the treatment group who received treatment, not an email telling the patient they arent eligible - as they were the included cohorts.
the claim in this report is that patients treated by IAPT with LTCs eg COPD, cardiovascular, cancer, ME/CFS, IBS, used less hospital care and increased employment in the 1st 3 months of treatment - treatment that could be 1 phone call, skype, or email - this needs investigating!

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More from @keithgeraghty

Jan 27, 2025
Article Guardian 'The mind/body revolution:' covers FND as the case example - Simon Wessely says its "unbelievably rare" - well his colleagues in UK psychiatry have actually pushed for it to be common based on their view that all medically unexplained symptoms in neurology departments may be called FND. theguardian.com/society/2025/j…
2. it will not be lost on all my followers that Prof Simon Wessely is a psychiatrist who pushed hard in the 1990s-2000s that illnesses such as ME/CFS and Fibromyalgia had no biomedical basis - essentially he and colleagues pushed a narrative of a biopsychosocial model without biology - and to have him be the commentator on the mind body revolution is ironic. If we look at depression research we see strides to show inflammation as a possible cause, changes in biochemistry following environmental factors, and genetics - thats true bio-psycho-social. But the same model has not been applied to ME/CFS and most likely is not being applied to FND.
3. You may notice the lack of mention in the Wessely narrative of viruses, or bacteria, or any pathogen as a possible trigger for any chronic illness, taking a healthy human into ME/CFS or other - the entire focus of germ theory medicine from 1800 to 1999 wiped away by a new view of "...emotional distress, environmental challenges, childhood trauma or “even being sedentary" as the important risk factors. We see pendulum swing, not a true integrative model, but a psycho-social swing, and whilst all factors are important, the key question is which are most salient to understanding cause and working out treatments.
Read 6 tweets
Oct 27, 2024
I think this really shows a clear and dangerous dogma in health psychology, that the 4 conditions focused on in the trial, IBS, Fatigue (ME/CFS), Pain, Fibromyalgia, are not "explained" & this CBT-based training does not explain all medically unexplained symptoms conditions.
The authors challenge the legitimacy of the term medically unexplained symptoms, but in paper they promote the notion of an even more nebulous disorder concept, Somatic Symptom Disorder or Bodily Distress Disorder, and assert that 2/3rds of participants meet the criteria for SSD.
In the trial, the patients with so-called MUS are not clearly defined, we have no data on complaints they have, MUS is very loosely defined, the inclusion criteria is difficult to understand, and high MUS score patients are excluded as they have too much MUS!
Read 13 tweets
Oct 25, 2024
@CGATist Prof Ponting is right to warn new researchers that ME research will not support careers, because it is almost impossible to stay focused on it long-term without funding. It is almost impossible to continue focusing on ME, so researchers move on.
I would like to raise the issue that UK ME charities tend to prioritise biomedical *lab research, meaning medico-health sciences research, epidemiology & the types of research myself and other health reserachers do, and want to do, is now severely restricted. So how to cotinue?
I wrote a letter titled "The Funding Gap" in ME to the 3 major ME charities in the UK. @MerukCEO @MEAssociation @actionformeI have recommended they collaborate to promote fellowships, PhD studentships, and long-term funding to keep people like me & others, focusing effort on ME.
Read 7 tweets
Jan 26, 2024
Acu Seeds & the Power of Belief: I spent an hour listening to a podcast with the @BBCDragonsDen contestant/director of Acu Seeds about her healing journey with ME/CFS. In her own words she says she was diagnosed with Jan 2019, made a 60% recovery by June, and 100% by Feb 2020. Image
A few important points: 1. data shows that younger people who suffer post-viral fatigue, eg post EBV/Mono, have a 90% chance of recovery within 1 year, it is only around 10% that go on to have symptoms post 12 months.
2. Ascribing recovery to any one factor, is fraught with bias.
3. I celebrate this person getting their health back.
4. Belief is a powerful emotion. She says she saw a chinese herbalist who put her on 60 different herbs and treatments (I assume this is wordplay & not factual in numbers terms).
5. Ear seeds appear to have played no part imo
Read 4 tweets
Dec 17, 2023
Just started listening to a couple of talks by the COFFI group, Collab Fatigue Following Infection - intro by director about choosing to get well after Long-Covid set the exoected psycho-behavioural control over illness tone, so far! coffi-collaborative.com/post/live-semi…
Watching these videos does make me feel a bit like a party pooper - for instance, I'd say to this speaker we "feel' tired after activity, we also "feel" tired after flu, whats the difference, explain the biology to me? Image
Each speaker deserves to be heard and with respect, but their ideas and models don't deserve respect, especially when outdated, here we have the Treat Response - HPA axis kick in - Fear-Avoidance Behav Model that is crude, it in no way explains ME or LongCovid - its small minded. Image
Read 9 tweets
Oct 12, 2023
I want to share some feedback of trying to continue ME/CFS research: I am struggling to continue in ME/CFS work due lack of funding despite effort & this is a challenge I do not know how to fix on my own. So, I am sharing my experience with all ME advocates/charities/supporters.
- I have had the most amazing support over the past few years from the ME community, esp via crowdfunding drives, from charities and private donations, however it is a real struggle to keep going without consistent funding, and I have shared this issue with UK charities this year
- I have had to halt my ME/CFS work, until I find a way to fund projects. I have published many scientific papers on ME/CFS, but this year I have struggled to secure long-term funding support. I shall share a bit more on this. Applying for grants can take months of work.....
Read 7 tweets

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