Misinformation is a big topic these days and runs rampant in the pain community. Sadly, those who are the biggest culprits are considered "leaders". They will spin lies in an attempt to keep you in the dark. It is hard to know what is real and who can be believed
This is a huge problem in the pain community in regards to pain policy and how it is effecting our lives. It is true and has been shown with evidence, that the CDC Guidelines were released in support of the National Pain Strategy (NPS). See below transcript from NIH/IPRCC mtg The above transcript is from a NIH/IPRCC meeting.  It is cleTaken from documentation at the National Academy of Medicine
Common misinformation is spread saying that the IPRCC tried to prevent the CDC GL's from moving forward. I would tend to believe the screenshot from the actual meeting transcripts above instead of a tweet from someone trying to convince us otherwise so much effort is going into making you believe that the NPS
The CDC GL's were necessary for the NPS to move forward. Opioids access made difficult in order to implement the strategy - a pragmatic clinical trial embedded into the healthcare system. Both documents promote alternative non opioid care for pain with less reliance on opioids This is taken from the Pathways to Prevention Federal Partne
Therefore, if you support the National Pain Strategy or promote those who do, you are essentially in support of a strategy that is decreasing access to opioids for patients who desperately need them, who have tried and failed all the other alternatives
As you can see, there are those who work hard to control the narrative surrounding the NPS.
Individuals commonly engaged in these conversations are affiliated with Mackey, Darnall and Stanford
As a part of the NPS, the Learning Healthcare System, clinical trials on alternative treatments to pain were needed. Pain patients were to be studied. Attendees knew patients would not be willing to abandon their effective opioid medications & randomized into a clinical trial This passage is taken from the Pathways to Prevention Worksh
It was decided, a pragmatic clinical trial would be embedded into the healthcare delivery system. Data on patients would be gathered live time. Generated data would inform what research was needed to fill the identified gaps which would then dictate treatment options for patients From an IPRCC meeting minutes dated June 3, 2013.  Sean Mack
Sean Mackey stated that he is working to advance the implementation, agenda and strategies of the National Pain Strategy. Here we have Sean Mackey stating this is exactly what he is doing (at 2 min)
This video was taken at the Change Agent Pain Summit meeting held in collaboration with For Grace, Nov 2, 2018. Kate Nicholson and Ed Coughlan with the National Pain Report were part of the "summit design team" so were very aware of the goals of the National Pain Strategy The Change Agent Pain Summit held in collaboration with For
Never failing to disappoint, the detractors (influencers) have come out to spread misinformation to prevent all of you from understanding that Stanford University, Mackey and Darnall are indeed working to advance the goals and objectives of the NPS
Confusing others about the real facts
Policing patient internet discussions in order to control the narrative. Prevent people from learning so that they could advocate for themselves.
Encouraging you to sit down, shut up and allow one of them (that just so happens to support the NPS) to be your "one voice"
Getting back to the NPS, I have been speaking out for years, this same person keeps trying to silence me, Why?...because I am telling the truth!
The NPS needs patient data. Notice the one lined in green: incorporate decision support for pain management into EHR....to identify patients...." this is the Learning Healthcare System
Hear Sean Mackey say that every patient, every doctors visit will be part of the study, turning all Dr's offices across the country into research labs. I am not kidding. Listen for yourself.
Since Mackey originally conceptualized everything for the VALUE study, and we know his work is in support of and to further the goals of the NPS, then that makes their work part of it.
The misinformation and lies need to stop. All of it. Since I see there is going to be an apology/information session where everyone comes to an agreed upon narrative. Why not let the #Truth be what we all agree to?
Links to pertinent research: forgrace.org/get-involvedsh…
Details on how the Pathways to Prevention research priorities are reached, strategized and implemented

prevention.nih.gov/research-prior…
Pathways to Prevention Workshop materials with multiple links on the page that are very informative

prevention.nih.gov/research-prior…
Federal Report on the Pathways to Prevention Meeting and further implementation information. Contains the proof that opioid reduction is a part of the National Pain Strategy

prevention.nih.gov/sites/default/…
Entire recording of the Change Agent Pain Summit where Sean Mackey speaks, describes the NPS and tells us all about how the work at Stanford is in support of and to further the strategy

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