@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews 1) I’ll try to do a thread: Check out all of the previous #MadStudies papers at pinkskythinking.com >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews 2) Check out lxprevolution.co.uk @LxpRevolution which is set up to discuss this, it has had a bit of a hiatus in the last few months but is still very relevant >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews 3) Check out work by @DrLouiseByrne who wrote publish.csiro.au/ah/AH19261 >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne 4) Louise also authored this with @SchrebersSister and @viscidula on the need for lived experience leadership within decision making as current structures effectively leave us powerless thelancet.com/journals/lanps… Louise also did an amazing rant opinion piece which I can’t find >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula 5) @SchrebersSister also authored the excellent ‘I am not your Nutter’ tandfonline.com/doi/abs/10.108… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula > Sarah also authored this alongside @BeresfordPeter and @DianaRose160 which shows that essentially none of the millions of pounds of PPI funding goes to SU led orgs or research, instead going to research where #LXP researchers are not decision makers tandfonline.com/doi/full/10.10… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 7) There is also the report authored by @RaiWaddingham for @NSUNnews on #LXP Leadership which includes the darker side and emotional toll of this: nsun.org.uk/resource/lived… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham 8) @RaiWaddingham talked about the report here: >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham 9) Myself, Bethan Edwards, @RaiWaddingham, @Jessica_Pons_ & @Shuranjeet also had a panel discussion where we included some of the really difficult stuff that goes along with #LXP leadership from both inside & outside the movement, racial exclusion: >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet 10) @NSUNnews have also done some great work where they were part of a steering group with @NHS_HealthEdEng which was developing a Peer Support Framework, and left when they felt that coproduction was compromised. They gave their reasons here: nsun.org.uk/news/nsun-resp… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng 11) Vikki from @PeerHubCIC gave an excellent rebuttal here: nsun.org.uk/mental-health-… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC 12) I also did a bit of a thing here. I posit that maybe Health Education England needs it’s own competence framework to work effectively with Peer Workers 😏: nsun.org.uk/news/response-… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC 13) Then there is paper by @AlisonF101 and Thurstine Bassett on the issues with formalising peer support for mental health services. Alison has done loads of other stuff too: emerald.com/insight/conten… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 14) There is this Peer Working experience on the @RITB_ website: recoveryinthebin.org/category/peer-… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ 15) There is Part 2 of the Peer experience series on the @RITB_ website: recoveryinthebin.org/tag/ritb/ >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ > There is also the incredible, infamous, much read and beloved blog by @HoppyPelican, giving her own harrowing experience as a PSW: themainoffenderblog.wordpress.com/2019/07/17/bac… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican 17) There is this classic too, by Jijian Voronka: academia.edu/resource/work/… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican 18) Also this gem of an experience that was read faaaaarrrrrr and wiiiiidddeeee by @allyc375: allywritesblog.wordpress.com/2018/04/28/a-b…
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 19) There is this by @Skourkos1 & Felicity Callard: onlinelibrary.wiley.com/doi/full/10.11… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 20) Made it to 20! Phew! Here is a presentation of research with #LXP staff at @BIG_SPD by myself & @melanieanneball: images.app.goo.gl/5CjnrUfahDLEKB… >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 @BIG_SPD @melanieanneball 21) Last of all a shoutout to @AsylumMagUK & it’s editors @HSpandler & @DPOURSANIDOU, @MadCovid & @MITUKteam who cover stories which are relevant to and include @LXP working, also @StopSIMMH, an example of activists doing their own peer emergency aid and suffering for it >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 @BIG_SPD @melanieanneball @AsylumMagUK @HSpandler @DPOURSANIDOU @MadCovid @MITUKteam @lxp @StopSIMMH 22) …and very much last of all a shoutout to all of you many academics and people who have written grey literature on this subject who I have missed out. I’m so sorry. Please add yourselves to the thread and let’s share the knowledge. I only know all this stuff because 3y ago >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 @BIG_SPD @melanieanneball @AsylumMagUK @HSpandler @DPOURSANIDOU @MadCovid @MITUKteam @lxp @StopSIMMH 23) I set up #MadStudies Birmingham group as a way to support people working in the lived experience professions by connecting us to our history, new knowledge, to feel less alone in the stigma we faced at work. It was open to anyone because everyone needed this knowledge for it>
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 @BIG_SPD @melanieanneball @AsylumMagUK @HSpandler @DPOURSANIDOU @MadCovid @MITUKteam @lxp @StopSIMMH 24) to truly make a difference. It’s been so successful and so many people have come, and it is the reason I could give you all of these examples in a thread, pretty much off the top of my head with a few reminders and links from Google. I’ve been really depressed because I have>
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 @BIG_SPD @melanieanneball @AsylumMagUK @HSpandler @DPOURSANIDOU @MadCovid @MITUKteam @lxp @StopSIMMH 25) had to put in a disability discrimination case about the way I have been treated as an #LXP staff member and the court process is killing me and it’s barely started. Can you believe the defence has asked me to prove I am disabled? So yes, there is a dark side to this work >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 @BIG_SPD @melanieanneball @AsylumMagUK @HSpandler @DPOURSANIDOU @MadCovid @MITUKteam @lxp @StopSIMMH 26) and it is important that we keep writing about it, get it into both academic papers that shape policy and widely read media that influences public opinion and change. This has helped to spur me on to get my ass outta bed (at least metaphorically) and to start sorting out >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 @BIG_SPD @melanieanneball @AsylumMagUK @HSpandler @DPOURSANIDOU @MadCovid @MITUKteam @lxp @StopSIMMH 27) next weeks #MadStudies group after a 2 month hiatus. DM me if you aren’t already on the mailing list, I will have the booking up on the website by the weekend and hopefully have found a paper for us to read 😳😳😳🙀 Hopefully see some of you there!!! pinkskythinking.com/book-online
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews @DrLouiseByrne @SchrebersSister @viscidula @BeresfordPeter @DianaRose160 @RaiWaddingham @Jessica_Pons_ @Shuranjeet @NHS_HealthEdEng @PeerHubCIC @AlisonF101 @RITB_ @HoppyPelican @allyc375 @Skourkos1 @BIG_SPD @melanieanneball @AsylumMagUK @HSpandler @DPOURSANIDOU @MadCovid @MITUKteam @lxp @StopSIMMH Please unroll @threadreaderapp
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