'A' is for anaemia (lack of red blood cells), and this can lead to tiredness, feeling short of breath & paleness 🩸
'B' is for bone pain and bone damage, as shown on X-rays – this may be thinning or fracturing of your bone in a few or many areas 🦴 #MyelomaAwarenessMonth 5/6
⚠️As infection levels in the UK continue to rise, we want to reiterate exactly what you need to do if you're immunosuppressed and think you have Covid.
It's important to act quickly so you're able to access the new antiviral and antibody treatments available to you 👇
First, confirm your diagnosis using a Government-supplied lateral flow or PCR test immediately.
Immunosuppressed people should all be sent a pack of lateral flow tests, but if you don't have any you can order more here if you're eligible:
You should inform your GP and hospital team immediately if you test positive for Covid, and you should receive an assessment call from the NHS within 24 hours.
If you don't receive a call, make sure you follow up.
We’re disappointed the Govt has changed its mind on this.
Without asymptomatic testing, immunocompromised people can’t get an early warning if they think they may have been exposed to Covid. (2/6)
It’s also disappointing the Govt won’t provide free tests for close contacts of the immunocompromised.
With the infection rate very high, getting close contacts of immunocompromised people to test before they meet them is an important way of protecting them (3/6)
NEW: Next week, the Government will announce its 'Plan for Living with Covid-19' in England🧵...
Around 500,000 people in the UK are immunosuppressed, including people living with blood cancer and stem cell transplant patients.
Many do not get the same level of protection from the COVID-19 vaccines as everyone else.
Today, with 17 other charities, we're calling for 5 key tests that the plan must meet to give immunosuppressed people the confidence and support they need to live with COVID-19.
🩸 We were started in 1960 by a family who lost their 6-year-old daughter to leukaemiaand so funding research into childhood blood cancer has always been a key part of our work.
🔬So this International #ChildhoodCancerDay we wanted to share just how far our research has come...
🎉 Improvements to blood cancer treatments now mean 89% of children survive leukaemia and lymphoma, up from 79% 20 years ago!
🤗This means that 700 more children and young people survived blood cancer who wouldn’t have done if the survival rate had stayed the same. #ICCD2022
🙌The improvement in childhood leukaemia survival has been amazing, and we are so proud of the role our research has played in helping improve treatments for childhood leukaemia...
We’re concerned the Government have announced plans to bring forward the scrapping of isolation rules in England and know how much anxiety and anger it will cause for people in our community.
We’re yet to see the Government set out their plan describing how the country will learn to live with Covid, specifically how people with blood cancer and others who are immunocompromised will be able to return to a normal life.
2/5
That plan must include additional support for our community including employment support & making it as easy as possible to access vital Covid treatments.
Ministers also need to ensure the public know that there are 500,000 in the UK for whom the vaccine is less effective..
3/5
...Since then, this treatment has been approved in the UK for some people with leukaemia and types of lymphoma. It is also currently being looked at as a potential treatment for people with myeloma too 🩸
Thanks to your kind donations, we’re able to fund dedicated researchers like Professor Waseem Quasim's work aims to create a more universal CAR-T cell therapy. His research could lead to people with other blood cancers benefiting from this treatment in the future.