The way the world works is rarely the way that's best for autistic people. In order to survive, we often need to change how _our_ world works. This means accommodating ourselves.
Let's talk about some of the best accommodations I've given myself since realizing I'm autistic:
1) Respecting my sensory needs.
My sensory needs didn't magically change when I realized I was autistic. I always knew stores, cafes, & public venues were overwhelming.
I knew I couldn't handle microfiber, oily textures, or unplanned wetness.
What changed was my own shame
Before realizing I was autistic, I pushed myself through abrasive sensory experiences because I felt I had to. Everyone else was okay, so why was I not?
When I inevitably had a meltdown, I figured it was something wrong with me. That I was broken somehow
Since realizing I'm autistic, I started to recognize these abrasive sensory experiences had long-acting impacts on my functioning.
Even hours after, I'd still struggle. I'd be anxious, emotional, overwhelmed, and I'd struggle with executive dysfunction
Learning to respect my sensory needs by turning down unwanted physical touch, wearing headphones in busy stores, and banishing microfiber to the hell it came from (for example) reduced my anxiety, stabilized my emotions, and increased my ability to function.
2) Ending social cue iSpy.
I've always struggled with subtlety & non-verbal communication. I never quite knew the rules for when you say or do what thing.
I spent hours reanalyzing conversations desperately trying to find subtle cues behind what people were saying
Once I realized how much energy this was taking, and how much anxiety it gave me, I stopped playing the constant game of social cue iSpy.
I started asking for people to communicate explicitly. And, importantly, I stopped hunting for the subtle cues when they don't
This made such a huge difference. Being blissfully unaware of the subtle things people were trying to say took so much pressure off.
It made social situations far less taxing and scary and, strangely, increased my confidence and self-worth at the same time.
3) Building in recharge time.
Self-regulating takes a lot of time and effort for autistic people, me included.
Before I realized I was autistic, I gave myself very little time to do that, and I gave myself even less time to recharge afterward
What this meant was that the consequences of one dysregulating event (sensory issues, low social battery, sudden changes) would pile onto the next event and the one after that.
Before I was even done my day, I'd crash, regularly taking days to recover
What was happening was that because I wasn't building in the time I needed to self-regulate, recover, and recharge, my brain was doing it for me.
After too many dysregulating events, I was just done, whether I wanted to be or not
While I still struggle to get enough recharge time, learning to specifically build time into my day to recover and recharge, especially after social events, has helped considerably.
Learning to accommodate ourselves is an important part of surviving the world when we're autistic.
These accommodations can look like so many different things to meet our different needs, but more than anything, these accommodations require self-acceptance
It wasn't until I realized I was autistic that I allowed myself these accommodations. That, I feel, was a grave error.
Accommodating myself sooner could have reduced how much guilt and shame I piled on and increased my self-worth and self-esteem
If you feel like the world doesn't work for the way your brain does, make accommodations for yourself!
Accepting yourself and building a world that works the way your brain does will only ever make things better. That, I feel, is one step closer to #AutismAcceptance
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Getting a diagnosis is associated with both positive and negative consequences.
On the good side, diagnoses can help us understand ourselves and plan for the future, including treatment goals. They can also enable us to identify and build supports towards personal growth
On the other hand, diagnoses can feel like a burden to shoulder, adding to self-shame and undermining self-esteem for some people.
They can lead to a decrease of support from people in our lives sometimes, and can encourage stereotyped thinking and expectations.
On the whole, getting diagnosed with any neurodevelopmental condition is a mixed bag.
There's some good that comes from it, but also some bad, and the amount of either really depends on the person and their context.
Executive dysfunction is core to ADHD and often involved in autism, depression, bipolar, and OCD.
It's a big barrier with widely ranging impacts from struggles getting started to being unable to stop, from memory to indecision.
But, what even is executive dysfunction? 🧵
First things first, executive function isn't just one thing; It's a series of abilities.
Struggles with any of these could be called executive dysfunction, but usually 'executive dysfunction' means struggles with many or all of them, especially as a barrier to getting started
The exact number of skills that make up executive function isn't entirely agreed upon, but for our purposes here, let's talk about four general categories:
1) inhibition, 2) attention regulation, 3) working memory, and 4) cognitive flexibility
Back before I had the words to explain it, I told someone "I'm bad at being friends."
I've since learned that part of the reason for that was my ADHD (and specifically my working memory, time agnosia, and rejection sensitivity).
And, I've since found some things that help. 🧵🧵
2/ The main thing I remember thinking as I told this person that "I'm bad at being friends" is that I really struggle with staying in contact.
People have a way of rapidly disappearing from my life. Messages go unanswered, and before I know it it's been months since we've talked
3/ Part of the issue is that, like many ADHD'ers, time doesn't work the same way for me as it does for NTs.
This is time agnosia, and for me, it feels like when something is urgent or interesting it feels so close and consuming that non-urgent things just completely disappear
I feel like I want to talk about boundaries, so strap in! (A 🧵)
Boundaries are so misunderstood, I feel, because so many people see them as rules, essentially. I say don't do X, and you don't do X...
...but that's not how boundaries operate.
So, let's talk about them!
Setting a boundary means drawing a line in the sand, sure, but it also means taking action when the boundary is violated.
This doesn't have to look like confrontation. It can also look like changing the topic, letting silence hang, walking away, or not responding (2/11)
The main goal of the consequence is not to punish the other person. It shouldn't be our goal to make them feel bad or shame them into changing their behaviour.
The main goal of the consequence is to meet our needs and keep ourselves safe and emotionally regulated (3/11)
Yesterday, I asked what ADHD/autistic folks expect from friendships. Here are some of the common themes:
• Authenticity - To not have to mask constantly with friends and to be ourselves
• Non-judgmental - To not feel judged for our differences or our needs (1/3)
• Showing up - To be there in big and small ways, whether that's checking in or major mutual aid
• Accepting special interests - Even if they aren't as interested as we are in our special interests or hyperfixations, listening (and sharing their own) is nice (2/3)
• Having shared interests - What it says on the tin
• Balanced relationships - To not have to put in all the work of planning, messaging, supporting, etc. That it's a mutual relationship (3/3)
Those videos of people "gentle parenting" other adults make me uncomfortable.
They all seem to put on the high-pitched voice and baby speak, and it makes me worry that people will think gentle parenting is just being condescending.
...I hope I'm wrong (1/10)
Toning down the vocab and doing a sing-song-y voice can be developmentally appropriate for talking to very young children (2-5 years) regardless of parenting style.
But talking to older children (or even adults) in the same way, isn't gentle parenting, it's infantilization (2/10
Gentle parenting, in my understanding, is using respectful, reciprocal communication with your children, often in a way that helps develop self-awareness, emotional regulation, and healthier boundary setting.
Communicating like this with adults is... just communicating (3/10)