Structured Success Profile picture
Apr 2, 2022 15 tweets 3 min read Read on X
The way the world works is rarely the way that's best for autistic people. In order to survive, we often need to change how _our_ world works. This means accommodating ourselves.

Let's talk about some of the best accommodations I've given myself since realizing I'm autistic:
1) Respecting my sensory needs.

My sensory needs didn't magically change when I realized I was autistic. I always knew stores, cafes, & public venues were overwhelming.

I knew I couldn't handle microfiber, oily textures, or unplanned wetness.

What changed was my own shame
Before realizing I was autistic, I pushed myself through abrasive sensory experiences because I felt I had to. Everyone else was okay, so why was I not?

When I inevitably had a meltdown, I figured it was something wrong with me. That I was broken somehow
Since realizing I'm autistic, I started to recognize these abrasive sensory experiences had long-acting impacts on my functioning.

Even hours after, I'd still struggle. I'd be anxious, emotional, overwhelmed, and I'd struggle with executive dysfunction
Learning to respect my sensory needs by turning down unwanted physical touch, wearing headphones in busy stores, and banishing microfiber to the hell it came from (for example) reduced my anxiety, stabilized my emotions, and increased my ability to function.
2) Ending social cue iSpy.

I've always struggled with subtlety & non-verbal communication. I never quite knew the rules for when you say or do what thing.

I spent hours reanalyzing conversations desperately trying to find subtle cues behind what people were saying
Once I realized how much energy this was taking, and how much anxiety it gave me, I stopped playing the constant game of social cue iSpy.

I started asking for people to communicate explicitly. And, importantly, I stopped hunting for the subtle cues when they don't
This made such a huge difference. Being blissfully unaware of the subtle things people were trying to say took so much pressure off.

It made social situations far less taxing and scary and, strangely, increased my confidence and self-worth at the same time.
3) Building in recharge time.

Self-regulating takes a lot of time and effort for autistic people, me included.

Before I realized I was autistic, I gave myself very little time to do that, and I gave myself even less time to recharge afterward
What this meant was that the consequences of one dysregulating event (sensory issues, low social battery, sudden changes) would pile onto the next event and the one after that.

Before I was even done my day, I'd crash, regularly taking days to recover
What was happening was that because I wasn't building in the time I needed to self-regulate, recover, and recharge, my brain was doing it for me.

After too many dysregulating events, I was just done, whether I wanted to be or not
While I still struggle to get enough recharge time, learning to specifically build time into my day to recover and recharge, especially after social events, has helped considerably.
Learning to accommodate ourselves is an important part of surviving the world when we're autistic.

These accommodations can look like so many different things to meet our different needs, but more than anything, these accommodations require self-acceptance
It wasn't until I realized I was autistic that I allowed myself these accommodations. That, I feel, was a grave error.

Accommodating myself sooner could have reduced how much guilt and shame I piled on and increased my self-worth and self-esteem
If you feel like the world doesn't work for the way your brain does, make accommodations for yourself!

Accepting yourself and building a world that works the way your brain does will only ever make things better. That, I feel, is one step closer to #AutismAcceptance

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More from @StructuredSucc

Jan 20
Those videos of people "gentle parenting" other adults make me uncomfortable.

They all seem to put on the high-pitched voice and baby speak, and it makes me worry that people will think gentle parenting is just being condescending.

...I hope I'm wrong (1/10)
Toning down the vocab and doing a sing-song-y voice can be developmentally appropriate for talking to very young children (2-5 years) regardless of parenting style.

But talking to older children (or even adults) in the same way, isn't gentle parenting, it's infantilization (2/10
Gentle parenting, in my understanding, is using respectful, reciprocal communication with your children, often in a way that helps develop self-awareness, emotional regulation, and healthier boundary setting.

Communicating like this with adults is... just communicating (3/10)
Read 10 tweets
Nov 22, 2023
Got my COVID and flu shots yesterday and it serves as such an important reminder of how neurodivergence impacts everything.

The shots have made my sensory systems go WILD today. Even everyday routine things are threatening to send me careening into sensory overload (1/
Feeling feverish and overwhelmed then impacts my executive functioning.

The energy to get started with things is so much harder to come by, and keeping organized and on task is even more of a struggle than usual (2/
"But Maaya, everyone feels like that when they're unwell"

Yeah, I agree that feeling unwell impacts everyone's executive functions, but when you have a more slippery grasp on them to begin with, these normal changes to executive functioning can lead to wild results (3/
Read 6 tweets
Oct 28, 2023
ADHD impacts every part of our lives, even things that most non-ADHD'ers take for granted.

So... let's talk about how ADHD impacts our relationship with food. A thread (1/🧵)
ADHD primarily impacts executive functions, including attention, impulse control, task initiation, working memory, and physical and mental organization.

Executive functions are a necessary part of just about all complex behaviours, including almost everything around food (2/16)
Struggling with impulse control, as many people with ADHD do, is probably the most obvious way ADHD impacts our relationship with food.

Following our impulses can lead us to overeating, having a larger amount of less nutritious foods in our diet, or even worse (3/16)
Read 16 tweets
Jun 22, 2023
For a lot of ADHD'ers, burnout is a frequent unwelcome companion.

This is because being ADHD makes us more susceptible to burnout, and changes what burnout feels like, and what it takes to heal from it.

Let's talk about it. A thread (1/🧵)
Burnout is a state of near constant exhaustion often coupled with a sense of ineffectiveness and negative perceptions of other people.

Burnout is more than stress or frequent overwhelm. People experiencing burnout generally don't feel like it goes away from short-term rest (2/25
Because we live in a capitalist hellscape, burnout is almost always considered a work-related problem impacting our ability to be productive.

For ADHD'ers, burnout also arises from other areas of our lives and wreaks havoc on these areas (3/25)
Read 26 tweets
Dec 22, 2022
Have you seen posts about how autism/ADHD "is the next step in human evolution" or similar?

That's Aspie Supremacy or ADHD Supremacy rhetoric.

Let's talk about what it is, why it's dangerous, and what we can do about it (1/🧵)
Aspie Supremacy is the theory that autism, and specifically "aspergers" or "high-functioning autism," isn't a disability at all.

Instead, they argue these are biological and evolutionary advantages (2/17)
Aspie Supremacists often argue they are superior to allistic people specifically, but because their rhetoric focuses on the experiences of "Aspies" or "high-functioning autistic" exclusively,

they also place themselves as superior to autistic folks with higher support needs (3/
Read 18 tweets
Dec 19, 2022
You know that feeling when you're going to buy something (such as a car) and then you just start seeing it everywhere?

Imagine having that with the most painful and distressing memory of your life. This is a trigger, and let's talk about it (1/🧵)
Traumatic experiences leave lasting scars on our psyches.

These scars can take many forms, from intense dissociation, to callous dismissal, to extreme pain points (2/10)
Regardless of the scar it leaves, these intense (and sometimes unhelpful survival mechanisms) can be triggered if the trauma is poked even by the most innocuous of things.

To make matters more confusing, these triggers can change and shift over time (3/10)
Read 10 tweets

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